Anyone tried Spinal Cord Stimulation for Chronic Pain?

Posted by steeldove @steeldove, Oct 25, 2018

Spinal Cord Stimulation – A Compelling Treatment Alternative for Chronic Pain https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Vladimir N. Kramskiy, MD Assistant Attending Neurologist, Hospital for Special Surgery, Clinical Assistant Professor of Anesthesiology, Weill Cornell Medical College
What Is Spinal Cord Stimulation?
Read more here: https://www.hss.edu/conditions_spinal-cord-stimulation-treatment-alternative-chronic-pain.asp
Posted: 10/8/2018

Anyone tried Spinal Cord Stimulation for Chronic Pain?

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I had a stimulator implanted over a year ago. It was provided through Abbott Labs. This is just one person's experience, but I would never recommend having a stimulator implanted.
The surgery recovery was promoted as easy, but it was far from that. I was in pain and sick for one month......didn't even leave the house. Add to that, the stimulator has provided no relieve at all from my arachnoiditis. Basically: pain and expense for nothing!

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@martyk

Thank you. I hope the current device will be able to reach my feet.

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My daughter has CRPS in her feet and ankles, swelling and pain. Stimulator has been recommended. I am interested in your device and experience if you care to keep us posted. Wishing you the best!

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I have severe neuropathy in my feet and ankles and nerve pain in groin from a bad hernis operation and had 2 spinal stimulation trials. One from NEVRO and another by Boston Scientific. Neither helped with the pain so I did not get a permanent implant. In fact the process caused me to developed RLS (Restless Leg Syndrome) as well as back issues where the leads were inserted. I am desperate to get relief from my pain and get some kind of life back so I am considering now a pain pump. Has anybody had experience with a pain pump? I would love to hear your story.

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I had the trial Abbott stimulator installed in November of 2021 and it worked like a charm. So I decided to have the permanent stimulator installed in December requiring surgery. I am really disappointed because the permanent is not working like I had hoped and I am still having a great deal of pain.

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Yeah. I am disappointed too. I posted about this before.
My Medtronics stimulator was put in a few months ago. I think it has helped a bit but I am so disappointed in Medtronics.
Absolutely no info on what to expect or how it works.
A B C programs. But NO information on what the differences are. You get a Medtronics nurse that you can call or text. But not a lot of help.
I have been mostly on A. Not helping a lot. So nurse told me to change to C. Initially it seemed to help more, but I lost control of my colon. Felt like I needed to pass gas but ended up soiling my underwear. No explanation from Medtronics on why. Just put it back on A and experimenting with intensity.
It’s a shame that they do not give more information. I think if the patient knew more about how it worked it could be better utilized by the patients.

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I've had an Abbott SCS for about 3 months, and found it moderately helpful. I have had HIV-related progressive polyneuropathy for 20 years or so,. While the stimulator does not assist with loss of motor function, it has provided some moderate pain relief to my feet. It essentially reduced the tingling, but does not affect the numbness, which is spreading.

I do walk with a cane now, as I was falling repeatedly because I couldn't sense uneven ground, especially outside. As others have commented, recovery is not always as fast as promised, but after about 2 months I barely notice it's there and can continue with stretching, biking on my stationery bike, and floor exercises as before. If fact, exercise is often overlooked as a way to deal with neuropathy. If you exercise already, please continue; if you don't, you should think about starting. At any age.

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My chronic pain doctor recommended the SCS for me as he has been treating me for years and my pain was still increasing. We tried the Nevro SCS trial with tremendous results. It stopped about 95% of my pain. So he recommend I go ahead with the permanent implantation. The Nevro rep said it was awesome that it helped with that much of the pain and even seemed to help with my Stiff Person Syndrome attacks. They said they should be able to replicate the trial with no problem. I asked to see the permanent devices and asked how they would work. They told me I would have to recharge the device probably daily and it should start relieving my pain in about two weeks. They would not allow me to actually see the devices and show me how they worked together. After the implantation on December 28th 2022, they gave me my kit and I found out the designers had only put about an 18inch cable between the control device and the charging paddle, making it incredibly painful and sometimes fruitless to try to charge it. They also designed only a 10 second timeout for you to be able to line it up. I can't believe any idiot thought that would be adequate. I was a programmer/network engineer for over 30 years and unless I didn't really want someone to accomplish something, I would NEVER program only a 10 second timeout. Not only has it not helped decrease my chronic pain, I have more pain now from the implantation and from trying to use the ridiculous charging unit.
On top of those problems there is been absolute no ability to recreate the trial because Nevro says they have to go through their "try and repeat" program for everyone in the same way. That is also absolutely stupid. Why not exactly replicate the same program found to work in the trial since everything is supposedly controlled and recorded by their computers.
I'm tired of being lied to by this company.
I DO NOT RECOMMEND THE NEVRO UNIT.

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@msgrstclair

My chronic pain doctor recommended the SCS for me as he has been treating me for years and my pain was still increasing. We tried the Nevro SCS trial with tremendous results. It stopped about 95% of my pain. So he recommend I go ahead with the permanent implantation. The Nevro rep said it was awesome that it helped with that much of the pain and even seemed to help with my Stiff Person Syndrome attacks. They said they should be able to replicate the trial with no problem. I asked to see the permanent devices and asked how they would work. They told me I would have to recharge the device probably daily and it should start relieving my pain in about two weeks. They would not allow me to actually see the devices and show me how they worked together. After the implantation on December 28th 2022, they gave me my kit and I found out the designers had only put about an 18inch cable between the control device and the charging paddle, making it incredibly painful and sometimes fruitless to try to charge it. They also designed only a 10 second timeout for you to be able to line it up. I can't believe any idiot thought that would be adequate. I was a programmer/network engineer for over 30 years and unless I didn't really want someone to accomplish something, I would NEVER program only a 10 second timeout. Not only has it not helped decrease my chronic pain, I have more pain now from the implantation and from trying to use the ridiculous charging unit.
On top of those problems there is been absolute no ability to recreate the trial because Nevro says they have to go through their "try and repeat" program for everyone in the same way. That is also absolutely stupid. Why not exactly replicate the same program found to work in the trial since everything is supposedly controlled and recorded by their computers.
I'm tired of being lied to by this company.
I DO NOT RECOMMEND THE NEVRO UNIT.

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My spinal surgeon who implanted my Boston Scientific device told me that it would help alleviate pain but not the numbness/tingling sensations. I also had the trial and it seemed to help significantly with my Morton's neuroma pain allowing me to walk in shoes on a hard surface. When I had the permanent unit implanted, it did not perform the same and has been a disappointment after trying many different programs, I was warned about the Nerve device which is why I went with the Boston Scientific device.

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@martyk

Thank you. I hope the current device will be able to reach my feet.

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My trial has been postponed until March. Let me know how you made out.

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@bal

I have chronic pain from the waist down. I did have a St Jude stimulater. It worked great for a little while. My Stims started going out one at a time until all gone. I had it removed. I’m sure they have developed better ones now.

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What year did you have the St. Jude implanted? Thanks

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