← Return to Hair loss after transplant, probably Tacrolimus: Anyone change meds?

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@hello1234

Hi @bobinnevada 😊
My local nephrologist also said 4 to 6 is fine and the transplant team said 6 to 8. When I spoke to the local doc office, they told me that you don't have to panic if occasionally you see a 4 or 5 in the mix.
My girlfriend had both of her PKD native kidneys removed after 1 year and things went very well. She was very nervous too, but everything turned out to be fine and the timeline the hospital gave her for recovery was shortened. She was home much quicker!
I have been dealing with BK for five months now. My Mycophenolate was reduced to 250mg bid, but not stopped. I don't take any Predisone. This week, my creatinine is up and GFR is down. I am going to be retested to confirm the numbers.
Not sure, what the next med adjustment is going to be. Maybe I will need a biopsy to determine rejection from reduced immune suppression or BK nephropathy. Not sure what the cause of the rise in creatinine is at this point.

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Replies to "Hi @bobinnevada 😊 My local nephrologist also said 4 to 6 is fine and the transplant..."

Hi Hello1234
Thank you for the input on the Tac levels. Also glad to here you girlfriends surgery went well, relieves a lot of anxiety for me.
As far as the BK virus, when I had it my copies were over 25000, fever, chills and creatinine was up, but adjustments to the meds they got it down to less than <500 copies which is acceptable. Took about 4 months for it to be undetectable.
BK is a common problem with transplants so stay positive, transplant teams are miracle workers..