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Hair loss after transplant, probably Tacrolimus: Anyone change meds?
Transplants | Last Active: Jun 11 10:36pm | Replies (179)Comment receiving replies
Hello, Hello1234
Thanks for the response. My nephrologist seems to like the level around 4-6 where as the transplant team wanted it between 6-8, so I was a little confused.. All in all kidney function is good, creatinine is 1.08 last blood draw and I am feeling well.
I have PKD, and am scheduled for surgery next week to have the native kidneys removed because of the size of them. Anyway they wanted to wait at least year to make sure the new kidney was stable. Nervous, nervous nervous.
I dealt with the BK virus 3 months after the transplant, they cut the cellcept out for a month and slowly put me back on to 500 bid, got it down to less than 250 and now it's undetectable.
I hope you are doing well after 2 years and feeling well.
Bob
Replies to "Hello, Hello1234 Thanks for the response. My nephrologist seems to like the level around 4-6 where..."
Hello @bobinnevada
In regards to Tacrolimus 6-8 levels, I would abide by Transplant Team recommendation as they are aware of all the different variables they encountered in decision making during the transplant.
I have completed 3.5 years my Tacrolimus range is 5-7 and take 1.5mg of Tacro/day. & I have accepted that as a maintenance dose. I would be happy with Tacro dose got reduced to 1mg but I was told if ever I encountered a rejection episode.. it is tough to deal with that as time advances.
Best
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Hi @bobinnevada 😊
My local nephrologist also said 4 to 6 is fine and the transplant team said 6 to 8. When I spoke to the local doc office, they told me that you don't have to panic if occasionally you see a 4 or 5 in the mix.
My girlfriend had both of her PKD native kidneys removed after 1 year and things went very well. She was very nervous too, but everything turned out to be fine and the timeline the hospital gave her for recovery was shortened. She was home much quicker!
I have been dealing with BK for five months now. My Mycophenolate was reduced to 250mg bid, but not stopped. I don't take any Predisone. This week, my creatinine is up and GFR is down. I am going to be retested to confirm the numbers.
Not sure, what the next med adjustment is going to be. Maybe I will need a biopsy to determine rejection from reduced immune suppression or BK nephropathy. Not sure what the cause of the rise in creatinine is at this point.