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Today is Day 1

Breast Cancer | Last Active: Feb 1, 2023 | Replies (14)

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@windyshores

HI there. Wow you and your spouse have a lot going on. So sorry.

It's good to be aware that lobular has some characteristics different from ductal. Here is a good organization to keep in touch with: https://lobularbreastcancer.org/ I would try to find an oncologist who specializes in lobular. If close to Boston, Oscar Metzger is a good choice
https://www.dana-farber.org/find-a-doctor/otto-metzger/
You are in the hardest part of this whole thing. Once you have a treatment plan, you just do it. You will get pathology results and if your cancer is responsive to estrogen (ER+) and HER2-, you will have a test called an Oncotype that tells you whether you can benefit from chemo. If not, you may do hormonal meds, a pill a day for 5+ years.

Lobular is harder to image so I believe more have double mastectomies for that reason. My cancer was mixed lobular and ductal and I went that route.

Keep us posted!

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Replies to "HI there. Wow you and your spouse have a lot going on. So sorry. It's good..."

Thank you for your note. I moved from Cape Cod to North Carolina 16 years ago. They do fabulous work at Dana Farber. I have work to do here to get the best treatment. First day of my journey.