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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (774)

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@redgiles

I was recently (November 2022) diagnosed with MGUS - routine blood work from primary care - Quest Lab suggested on report that additional tests be run.

Was already an existing patient at MD Anderson - Houston. Was able to get appt. with Dr. Saini in Myeloma dept. He ran lots of blood work and confirmed I have IgG MGUS.

Will have follow up bloodwork done every 3 months. Next appt. at MDA is
February 9th, 2023

What is your plan going forward ?

Jackie in Hill County, Texas

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Replies to "I was recently (November 2022) diagnosed with MGUS - routine blood work from primary care -..."

I switched from one medical provider to another due to not being able to get the care I felt was needed. I have to get new bloodwork done for my new physician because he felt the previous doctor wasn’t giving my issue enough attention. I also have anemia and that is the issue that was receiving the attention. However, according to my bloodwork from Aug 2022, the new physician said I will need to be seen every three months.

I’m a little disappointed with my previous provider because MGUS was diagnosed, but essentially it wasn’t being treated/monitored.

Hello from Galveston not far from MD Anderson. Can I ask what routine test diagnosed it? Thanks

My daughter was just diagnosed with MGUS. Her specialist that are treating her said she had protein in her blood which they were keeping an eye on. She did bone marrow test and scan and slight blood appeared in bone marrow. They wanted to see her back in 3 months to keep an eye on progression. We went for a second opinion at one of our University hospitals and they suggested aggressive treatment so it didn't progress. So many medicines and so much stress. Should I worry so much?