← Return to Newly Diagnosed CLL Patients: Do you struggle with symptoms?

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@raremiracle2

Reply by @missypurtee THANK YOU FOR YOUR LOVE AND CONCERN; 1.Cold Induced urticaria, 2. Cold Anaphylaxis shock, 3. Cold Induced Asthma, 4. Chronic Bronchitis / pneumonia in winter months (3-5 times on antibiotic winter months or 6 months on antibiotics - since high school) 2016 Moved to Florida Jan- Feb is hardest months less antibiotic. 5 HAE ANGIOEDEMA , 6 (hypothalamus disorder) (broken hypothalamus; never run a fever, don't get thirst (feel hunger) temperature is mix-up and can't get warm without "heater" My signals are kris-kross miss-up, ect High blood pressure 109/70-250/159 swings ; 7. 3- HBP doesn't work (too cold over 200/120 and now heat / humidity is the same 200/120 LOL! Heat doesn't make me vomit like getting cold - 8. (2022 Polycythmia, 9 myelofibrosis which is type of leukemia and anemia (always had high iron) NOPE: NOT on SSI and never had a job for few months (got cold and passed out at work) home hospital study with nurses ... I told my doctor I only collect rare diagnosis and can't have cancer; it's not rare enough

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Replies to "Reply by @missypurtee THANK YOU FOR YOUR LOVE AND CONCERN; 1.Cold Induced urticaria, 2. Cold Anaphylaxis..."

My son has issues with cold, he can’t regulate it. He has many other issues due to chiari 1 malformation. I’m so sorry ur suffering so much. I hope you can find some relief