1. < Post-COVID Recovery & COVID-19

Anyone using wearable devices to track and manage long Covid?

Posted by ericy210 @ericy210, Jan 20, 2023

I had a neuro appointment at Northwestern U this week. Besides logging my symptoms every day, they can now link to Fitbit, Apple Watch, etc.
Some articles quote people saying it gave early warning signs or taught them to modify behaviors .
I’ve only used a Fitbit in the past to track jogging distance.
Dos anyone have experience with using a wearable device to help manage long Covid? Thanks- I’m just starting to research.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

poppy67 | @poppy67 | Jan 30, 2023
In reply to @healthnut77 "You body sounds like it has a lot of inflammation. Have you ever tried a gut/liver..." + (show)
@healthnut77

You body sounds like it has a lot of inflammation. Have you ever tried a gut/liver cleanse to see if that calms your symptoms? Unknown to me when I did this, it worked. Crazy but a very strict high quality animal based diet for 6 weeks (like the one on Heart and Soil) did the trick. Very little to no carbs, no alcohol or smoking for that time period. You HAVE to stick to the plan, no cheating during this period to reset gut and flush of toxins in liver. Honestly in just 1.5 weeks my body had a huge transformation (along with hundreds others in the group that followed to a T) and I lost so much water weight and overall bloat. GI issues/pains totally gone. Gas totally gone. Bloat totally gone. Brain fog gone. Energy spiked beyond belief. Heart flutters started to subside. Mood and libido improved. Sugar levels stabilized - no more crashes and cravings. Hormones stabilized - cycle & skin improved. Tingles/numbness/weakness improved and after a year adding back in some carbs is dramatically better. Blood work is stabilized and iron/ferritin improving. Colon/endo normal/healthy and signs of healing. After 10 years of Synthroid, may no longer need thyroid drugs. Now I know what veg/fruit my body likes best and can even inteminate fast when I couldn't before. Honestly I'm in shock the results as something so simple but now I see the science and feel enormously better than I have since post P shots. I was a skeptic but desperate for anything and it worked for me to heal from post v issues along with some others. Might be something to look into since it sounds like your inflamed/having autoimmune responses, too. Gook luck!

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Where can you find the info on how to follow the gut/liver cleanse? Is there a book or a site you followed on line?

REPLY
orlanda | @orlanda | Jan 30, 2023
In reply to @healthnut77 "You body sounds like it has a lot of inflammation. Have you ever tried a gut/liver..." + (show)
@healthnut77

You body sounds like it has a lot of inflammation. Have you ever tried a gut/liver cleanse to see if that calms your symptoms? Unknown to me when I did this, it worked. Crazy but a very strict high quality animal based diet for 6 weeks (like the one on Heart and Soil) did the trick. Very little to no carbs, no alcohol or smoking for that time period. You HAVE to stick to the plan, no cheating during this period to reset gut and flush of toxins in liver. Honestly in just 1.5 weeks my body had a huge transformation (along with hundreds others in the group that followed to a T) and I lost so much water weight and overall bloat. GI issues/pains totally gone. Gas totally gone. Bloat totally gone. Brain fog gone. Energy spiked beyond belief. Heart flutters started to subside. Mood and libido improved. Sugar levels stabilized - no more crashes and cravings. Hormones stabilized - cycle & skin improved. Tingles/numbness/weakness improved and after a year adding back in some carbs is dramatically better. Blood work is stabilized and iron/ferritin improving. Colon/endo normal/healthy and signs of healing. After 10 years of Synthroid, may no longer need thyroid drugs. Now I know what veg/fruit my body likes best and can even inteminate fast when I couldn't before. Honestly I'm in shock the results as something so simple but now I see the science and feel enormously better than I have since post P shots. I was a skeptic but desperate for anything and it worked for me to heal from post v issues along with some others. Might be something to look into since it sounds like your inflamed/having autoimmune responses, too. Gook luck!

Jump to this post

Restoring gut microbiome is crucial to well being and reducing inflammation. Good for you!!!

REPLY
christine8 | @christine8 | Jan 31, 2023

I have post Covid POTS. I use a FitBit to track my heart rate and it has been really helpful. I have gotten used to how higher heart rates feel and I don’t always notice a heart rate spike until it’s too late. The FitBit has been a great resource to help me respond safely to my symptoms.

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prancer20 | @prancer20 | Feb 1, 2023
In reply to @kirstenlheld "I am so sorry to hear all this but not surprised. The way we have handled..." + (show)
@kirstenlheld

I am so sorry to hear all this but not surprised. The way we have handled or really failed to handle this whole situation is close to criminal as far as I'm concerned. From day one, I was even more scared about getting long COVID than dying outright and couldn't even get my own family to agree on how to navigate the pandemic, and I am a public health expert, so, dammit!!!! I knew what I was talking about. To say I am heartsick at this point is the understatement of the century. I hope that by participating in this study, we can contribute in some way to helping people like you who already have long COVID.

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Thanks for expressing your feelings about how the Covid epidemic has been mishandled in the USA. I had a mild case initially in early December and 8 weeks later, still experiencing fatigue, occasional dizziness and some tachycardia. I have to wait another 4 weeks to try to get into Scripps Long Covid Clinic. I am so distressed by the attitude of our representatives in Washington and our president. They now have declared that the threat from Covid is mostly "over." Ask those of us who have Post Covid Syndrome how much it is over. Human nature seems to put us in a state of denial. The economy is more important than anything, of course. Sorry for the rant, but I needed to get this out.

REPLY
prancer20 | @prancer20 | Feb 1, 2023
In reply to @lbyrd02 "Thanks Kirsten, I'm a senior manager in the EPC industry (Engineering, Procurement & Construction) and my..." + (show)
@lbyrd02

Thanks Kirsten, I'm a senior manager in the EPC industry (Engineering, Procurement & Construction) and my assessment is similar to yours - Criminal.
We are 3 years into the pandemic and we (US Citizens) can't simply get a diagnosis and treatment freely without someone trying to deny it.
With estimates of 45% of all Covid survivors experiencing some form of Long Covid we are talking 100s of millions of potentially affected people in the US and as it continues (Uncontrol of the virus) it will only increase as have the deaths. I know we rushed the vacines out, have not yet actually approved them (FDA) and I'm certain the government has held them harmless from legal recourse and the bill to treat the potential Long Covid patients could dwarf the money spent on the vaccines. We are looking at $Trillions to treat all the current and future Long Covid patients. While it might cost $500 for 3 vaccines and two boosters - to treat someone with serious organ damage from long covid the bill could easily be 100X or $50,000. We are talking 10s of $Trillions.
Clearly someone has done the Risk Analysis and have decided to ignore the problem.

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Thank you for your comments! I have been thinking the same. Millions of people suffering from Long Covid and our president and Congress is in denial!!
I have even read in a scientific report that so many suffering from Long Covid might be one of the reasons for the recent labor shortage.

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smalladjustment | @smalladjustment | Feb 4, 2023

F(41), primary infection Jan 2022, PASC since late Feb 2022.

Over the last 8 weeks, I’ve been using my Garmin Fenix 6S (I was marathon training in the lead up to my infection) with HRV and heart rate tracking as useful metrics for understanding pacing & managing my exertion to remain within my energy envelope. I also had to demand beta blockers from my PCP to begin to manage any upright activity as my heart rate would spike 30-70 bpm > RHR and not relent, just by simply getting out of bed. I’m in a Facebook group called “Beat Long COVID With a Smart Watch” which has been invaluable in helping me establish how to begin utilizing the information I get from my Garmin.

Lovely that we must crowdsource this information for ourselves since the US healthcare system is rooted in neither health nor care.

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