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Extreme outer ear pain: What can it be?

Ear, Nose & Throat (ENT) | Last Active: Aug 8, 2023 | Replies (402)

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@grammiejo

I came across this forum after another sleepless night. I have been suffering with this for about two years. Mainly right ear. I sleep on my right side. But when I’m trying to sleep on left it will happen on that side as well. Much more painful on right. It was happening about once a month. Now weekly and more often than that. Last night was horrible and for the first time was in my jaw some. It is now 5:00pm and still have some pain. It brought me back to google to search once again for answers. In the past few years I have gone from an extremely healthy and active person to one that suffers daily from many issues. A year ago I was diagnosed with Autonomic Nervous System Disorders, Dysautonomia. Within that is POTS. Is anyone else in this category? I’m wondering if it could be part of this. I’ll see my neurologist in November and will be sure to ask about it. I haven’t yet because I’m tired of my body failing me once again. Happy I found this. Once again I am not crazy. This is a real thing.

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Replies to "I came across this forum after another sleepless night. I have been suffering with this for..."

I feel you - so aggravating to yet another crazy thing the docs can't tell you what is and you sound crazy when you try and tell them about it. Tried so many things - different vitamins and minerals, went for a sleep study in case it was that. I did need a CPAP, but it didn't help with the ear pain unfortunately. I bought one of the little foam travel pillows with a hole for the ear, and it seemed to help, but was too small and I kept having to re-position it through the night to keep my ear over the hole. I got the bright idea to get a memory foam pillow and cut out a section to accommodate the small pillow inside it. Well, that didn't really work. I took out the small pillow, and then just for kicks, I put a soft cotton pillowcase over the big pillow which now had a BIG hole in it and tried that. It works better than anything I've tried. I still don't get as much rest as I'd like because I can only sleep on my sides, but it is better.

Was bedridden about a year and a half ago, suffering from severe ear cartilage pain, severe foot pain, severe back pain - all with pressure. And severe diahrea. Had severe night sweats, fluctuating body temps, high heart rates, and high blood pressure. Several doctor's told me I was crazy. One doctor wrote me a script for Meloxicam. Solved most of my issues. Meloxicam, the wonder drug. Ear pain is all gone as long as I take my medicine.

Ask your doctor to try you on Meloxicam. It works for me. Get a great night's sleep since using this.

I’m trying to remember if I was ever put on Meloxicam? I have been giving so many drugs over the passed 4 years. It sounds familiar. Last night was 3rd night in a row. Hoping I can get a break. Not sure why it amped up so much. It feels like my cartilage is hard when I’m lying on it. It hurts to touch. Usually it goes away during day, not the last few. Not as bad as night but still painful. I know i’m In a flare with my condition. My BP has been very low, I fainted about 5 days ago. Pain returned after that. One of the reason I was wondering if anyone has been diagnosed with a Dysautonomia. I receive immunoglobulin infusions 2 x a month. Hoping to jump start my immune system. Thanks everyone. I was happy a year ago when I was diagnosed because I was beginning to think I really was crazy. Now finding this forum I know one again it’s a real thing.

It is Real!