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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)Comment receiving replies
Good Evening
I am in The Philippines so my associations and trials are limited. I am 78 and was diagnosed 2 years ago. I had never heard of the glove but am very interested in tracking that down. I tried grabapentin and felt it made everything worse so stopped it. I am on low dose carbidopa-levodopa and it seems to help. I have whole body tremors and studdering and choked pretty badly a number of times so am learning how to be safer there.
I have the best luck slowing things down by walking and mild exercise. I am also practising working on my attitude. I think we can get bogged down fairly easily because this is not any fun but that only makes it worse. The brain fog is the worst thing so I read a lot, play card games on the computer and write at least an hour a day. I think Mayo clinic connect is great since we may have differences in our symptoms but at least we understand what everyone is going through. Welcome to the club 🙂
MJF is my hero/example and I figure I can do this for 20 years if he can do it for 40.
Replies to "Good Evening I am in The Philippines so my associations and trials are limited. I am..."
Appreciate your post! I agree about exercise and attitude. I found daily exercise to be crucial to managing my symptoms. Also, my neurologist recommended a great therapist who is knowledgeable about the nervous and endocrine system and has helped me understand the brain/body connection. I practice creating new neural pathways that help me respond to outside stimuli in healthier ways. We can't control what happens to us, we can only control our response to what happens. And our response affects our brain/body. It helps a lot to understand how harmful stress can be to our health. If we can manage our stress response better, we can lessen the damage to our brain/body.
It sounds as if you are creating new positive neural pathways. For that I congratulate you!
Take care - stay safe!
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Thanks for a very uplifting post, I know it made me feel better and I hope others shared your optimism. Human nature of course dictates that unless we make a positive effort otherwise, we will occasionally slip into feeling sorry for ourselves. I know I fight to stay positive each day and it helps to know there are others in the same struggle. Thanks,