Creon has become my best friend although it took a few step ups to get the right dosing

I have been getting for a $35 monthly copay. I have a Medicare part D plan with Wellcare. I am not sure how this works, but it is being covered by my Medicare part D plan.

I'd like to add my welcome, @sqlgirl13. I love your picture and hope you'll add it to your profile.

It is sad and scary to get a new diagnosis of exocrine pancreatic insufficiency (EPI). In addition to the helpful replies you got from @gardenlady1116 and @nonnie9153, I'm tagging other EPI members like @7judy2 @stageivsurvivor @lon @irr4et @dia2ne @kamama94 @jenatsky @anniegk @ruble429 @mialeigh @carolannd to join this discussion.

You may also be interested in this related discussion in the Digestive Health support group:
- New to exocrine pancreatic insufficiency (EPI): What helps? https://connect.mayoclinic.org/discussion/exocreine-pancreatic-insuffencyepi/

Back to you sqlgirl, how are you doing on Creon? Has it helped? What questions do you have about what to expect?

Wow, I'm in the same boat. Diagnosis made for a sad Valentine's Day, as this is added to my 15 years of lymphocytic microscopic colitis. Enough already!

Happy that my new gastro doc identified this, but scared as hell.

I too have just been diagnosed with EPI and have been put on Creon. Don’t quite know how to navigate this new world🤪🤪🤪
I’m planning a trip to France in May & am scared I can’t to it! And hints?

I too have recently been diagnosed with severe EPI and got samples of Creon and Trulance. There is no way I can afford the cost of these drugs, do not know what I am going to do. I have a CT scheduled w/contrast. I've had pretty bad symptoms of EPI 2 -3 years ago but no one listened, but now confirmed WOW!!!!

I was diagnosed with EPI 3 yrs ago with a fecal elastase test of 72. This is considered severe. I also had a 24hour test which was severe as well. I have used Creon and now ZenPep with very little results. If I don’t take it, my gums bleed. My dentist confirms that I have excellent gums. I always have streatorrhea. The enzymes don’t help. My CT scans with iodine drink and contrast shows a great pancreas. So my question is do I really have EPI, or is it something else. Through the years I have increased up to 9 pills per meal nothings seems to help and no doctor understands what this is all about.
In 2015 I was on a cruise ship on the Atlantic Ocean when my appendix ruptured. It took about 8 hours or so to get help my an airlift to the Azores for 5 hours of surgery. I also got sepsis. I have since had 5 surgeries to correct damage and trauma to my abdominal area. I have an appt next week at the University of Utah for more info on this and other issues. I am on ZenPep now but am not refilling due to pricing and not enough help from it. I have tried OTA enzymes from Amazon which didn’t help either.

New York. There is a Medicare coverage limit, I am not sure what will happen when I exceed the limit and fall into the Medicare Part D "donut hole"

Yes if you go to the website for Creon they have a free savings card to give to your pharmacy. It’s very cheap that way . Unfortunately it didn’t work for me ( the drug ).