← Return to Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

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@flynnconn

I was initially diagnosed with Essential Thrombosis ET be Suze of higher than normal platelets, rising from the 400s to 511, 588 then 612 in a period of a few months. I agreed on Nov 8 to take 500 mg hydroxyurea HU and in December had the bone marrow biopsy. BMB. My platelets have dropped to 399 but BMB revealed I have prefibrotic myelo fibrosis. Next step was ultrasound of spleen and not sure if it has enlarged or not. The interesting part is I have not experienced any definite side effects from HU and sailed painfree through the BMB. I am 83 and in good health up until now. At my age I expect to feel tired and am sometimes short of breath when climbing stairs or carrying heavy grocery bags. Watching tv and playing games with my grandsons ages 8 and 3 are my activities. I’m not sure what the future holds for me. Trying to avoid negative thoughts. Hoping the worst scenario doesn’t happen.

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Thoughts and Prayers! You got this!❤️🤗❤️