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Essential Thrombocythemia (ET) and viruses

Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)

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@bettyk49

I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred me to a hematologist. Who is also called an oncologist. I have chrons and most of the past 9 years I have been anemic and I would just go and have an iron infusion. I usually have low red blood, white, hematocrit but high platelets. I have infusions for chrons also. I was looking for something on my My Chart and found I had Essential (hemorrhagic) thrombocythemia. I have so many conditions on My Chart I never noticed it. I never really fill great but I thought it was because of my chron and fibromyalgia. My Oncologist has never suggested I take anything for this disease and never really mentioned it. I can't take asprin because of chrons. I do take a blood thinner which was prescribed by another Doctor. I am usually given a choice of whether to come back to the Doctor in a month and a half or three months. I just thought if I get to feeling too bad I would just make an appointment and have another iron infusion. Does the name ( hemorrhagic) make the disease I have different from essential thrombocythemia?

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Replies to "I had a TIA at the end of 2014. After seeing many Doctors one Doctor referred..."

Hi @bettyk49 I see you’re new to our forum and I’m happy you found us. You recently discovered that you have essential thrombcythemia. With your history of a TIA, the blood thinners you’re already on play an active role in treating ET since having too many platelets can cause abnormal blood clotting. So the blood thinner is taking the place of the aspirin.
It’s good that you’re seeing an oncologist/oncologist. That is a blood specialist. I’m surprised he/she didn’t talk over your diagnosis with you. I think at your next appointment with your hematolgist or their Nurse Practitioner, you should discuss what you’ve found on your My Chart so there is some clairification for you.
You were wondering if hemorrhagic thromboyctyemia is worse than essential thromboyctyhemia. They are one in the same. Essential thromboycythemia was formerly know as Hemorrhagic thrombocythemia.

When is your next appointment?