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Hair loss after transplant, probably Tacrolimus: Anyone change meds?
Transplants | Last Active: Jun 11 10:36pm | Replies (179)Comment receiving replies
Hi, I enjoyed hearing your story. I think I got the blood clots from having Covid for three weeks. Now I’m on A blood thinner too. I am not taking any Cellcept yet, until my BK titer stays below 1000. Then I have to go to 500 mg per day. My hair loss has been better recently. I have been taking 1.5 mg Tacrolimus daily. I take a
3000 mg Biotin and vitamin D and calcium, and a multiple vitamin every day. I have noticed that my eye brows and lashes are growing back, not sure about my hair yet. It’s a long process; we always have to be watchful of what we eat and who we see, and what we do. Sometimes I forget that I’m immunocompromised. Keep in touch; it’s nice to know I can share my trials with other people.
Replies to "Hi, I enjoyed hearing your story. I think I got the blood clots from having Covid..."
Hello Roxanne, my name is Bob,
I had my transplant a year and 4 months ago, I was just curious about the immunosuppressant drugs you take.
I'm taking 500mg cellcept twice a day,1 mg prograf (Tacrolimus) twice a day and 5 mg predisone in morning.
My prograf level sits around 5.9
I was curious how much prograf you take and what your level is. If I'm being too nosey tell me.
Thanks and congratulations on 4 months
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@roxanne12345 😊
Yes, let's definitely keep in touch! I was diagnosed with BK virus back in August. I heard it can take almost a year to clear.
If you are not taking Cellcept, are you taking 5mg or 10mg Prednisone with your 1.5mg Tacrolimis or something else? Is your BK viral load getting closer to 1000?
I am hopeful that my BK may clear in a couple of months (fingers crossed!)
I didn't know that covid can cause blood clots. I am happy to hear they are protecting you with thinners. Be safe and wear your mask indoors when you are close quarters with strangers. I know it's easy to forget that we are immune suppressed when out with friends.