It was like a 3-4 year process with many doctors and me dragging my feet every step of the way! i look back now and could kick myself for not getting to this point quicker, but oh well. I’d never had an mri, surgery, or anything before so I was terrified. And I’m extremely claustrophobic…good times. Please keep going to the doc until someone figures it out. Have you had an MRI yet? If yes and it didn’t show anything, did doc say anything about cerebral angiogram? That’s what finally led to my diagnosis. They originally thought it was stenosis brought on by blood clot. That’s what MRI looked like because it doesn’t show the whole picture. Good luck, I hope you get a diagnosis real soon!