Pulsatile tinnitus

how are you feeling now, in 2023. Is it still there? I have it, its driving me crazy

how are you doing now? thanks

Doing good. Finally did brain radiation 2 years ago because that was the only treatment left other than traditional brain surgery. Radiation can take a few years to work, but I haven’t heard anything in my ear since March 2021. About to go to 2nd annual MRI follow up next month. How are you?

Thanks for asking. It is still there and every night I go to bed thinking, tonight will be different. But no. It is the same. My only relief is that if I put my head in a certain position, it is less. But sometimes I wake up with a stiff neck.

I understand how frustrating it can be. Have you tried white noise machines. They are inexpensive. I bought one on Amazon. I listen to rain and nature sounds. It doesn't make pulsatile tinnitus go away, but it's a nice distraction.

This is different, white noise or plugs in my ears that's not going to do it. It's like the sound is coming from behind my ears? And it's a turbulent sound this is more at night time when I'm lying down it has nothing to do with that I'm noticing it more, I can go to bed when it's quiet and everything, but the line down something brings a rush of whatever to that area. And it beats really really fast until I sit up or stand up and then it starts to slow down. It takes a while though. And then I start all over again. Thank you though for the reply. But white noise doesn't fix what I have that's for sure

Did you have cancer, they did radiation and not stop the washing and the turbulent sounds? Mine are really bad especially at night I just woke up this morning I had about five episodes throughout the night. I have to wait for it all to calm down, it's in my ears or around my ears, I don't know if blood rushing to my ears because I'm laying down. It's awful.

I just got this pulsating titanitis about 2 months ago. I think for me it seems to be worse at night time, as I'm lying down. I will eventually cuz I'm so tired these last four or five weeks, fall asleep, and then I'll wake up to the heart pulsating sound in one ear or both, and then a turbulent sound of Rush or pressure or something. I'm going to assume because I've been on the internet lol, that it's blood rushing through the veins and I'm lying down so it's coming down that direction. I'm so scared and it's obviously annoying. During the day it's better not 100% but better. Night time I just dread

No cancer, I had a dural arteriovenous fistula in brain located near my right ear. That was creating the turbulent blood flow which had me hearing the whooshing 24-7. And yes it was always worse at night. I actually got the idea from that whooshers.com and finally my doc referred me to a neurosurgeon. They tried embolization, but it came right back so my only other option was radiation. It took me a year to work up the nerve for that…but so glad I did. Every day I relish in the silence!!

I applaud you for the courage. It could not have been easy. You had a definite diagnosis and that is the first step. And then you didn't give up when the first treatment didn't work. Radiation sounds scary, but then when you weigh it against quality of life and a decent night of sleep...... I am going to keep looking for answers too.

It was like a 3-4 year process with many doctors and me dragging my feet every step of the way! i look back now and could kick myself for not getting to this point quicker, but oh well. I’d never had an mri, surgery, or anything before so I was terrified. And I’m extremely claustrophobic…good times. Please keep going to the doc until someone figures it out. Have you had an MRI yet? If yes and it didn’t show anything, did doc say anything about cerebral angiogram? That’s what finally led to my diagnosis. They originally thought it was stenosis brought on by blood clot. That’s what MRI looked like because it doesn’t show the whole picture. Good luck, I hope you get a diagnosis real soon!