Need Help - Hematology won't do testing

Posted by wiggins32 @wiggins32, Nov 28, 2022

I developed iron deficiency anemia 4 yrs ago for no apparent reason or event. I'm allergic to oral iron, so infusions required. The past 2 yrs, the need for infusions increasing. In 2022, I've had 4 infusions. The symptoms of IDA are life-altering for me. I've begged for testing beyond standard bloodwork, but they won't do it. I tried a 2nd opinion. No tests show source of blood loss, but my iron saturation is usually around 5, and other abnormal blood results. I have asked for a bone marrow test, but no luck. With the drop in Ferritin happening much more, I can't understand why they won't investigate. No tissue samples taken even with severe gastro issues (no cancer found). Any suggestions? I've tried changing physician group but every other group seems to fear my current provider. I'm stuck and sick.

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wiggins32 | @wiggins32 | Jan 29, 2023

In reply to @jerrysgirl3 "What were the results of your bone density test?" + (show)

Happy news...bones are strong....joints not so much. Thx for asking my friend. Hugs.

dorisj08 | @dorisj08 | Jan 30, 2023

My suggestion is to try using cast iron skillets for everyday use. I have a high iron count (which can be bad it too high) anyhow I attribute it to using cast iron skillets. Easy way to get iron without side effects. Just my opinion but worth a try.

missypurtee | @missypurtee | Jan 30, 2023

Some are genetic Bc my moms side were all anemic. Not until month ago I didn’t know how serious it can be causing heart issues. I’m scared!

missypurtee | @missypurtee | Jan 30, 2023

Take b12 folate and iron pills. Should get higher. Don’t drink coffee Bc it blocks absorption

wiggins32 | @wiggins32 | Jan 30, 2023

Update: It's confirmed that I don't have Celiac, which is a relief. Very important new info...turns out I have low IGA and another IG, which I will know in few days. Have appt with an immunologist (no appt until June). The internist is hoping I am a candidate for immunotherapy, since I am low in more than IGA. I just found out this detailed info was initially found in labwork from 2018, then 2020, and again last month. I am so full of hope that frequent infections and chronic diarrhea can be addressed now. Blessed 🙌

missypurtee | @missypurtee | Jan 30, 2023

In reply to @wiggins32 "Update: It's confirmed that I don't have Celiac, which is a relief. Very important new info...turns..." + (show)

Tested for heb b?

wiggins32 | @wiggins32 | Jan 30, 2023

EBV? aka, mono...epstein barr? That has been my biggest pain in arse! Is that what you mean?

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