Need Help - Hematology won't do testing

The first Oncologist didn't want to do the biopsy. He's only going to check my labs every 6 month. Doesn't seem interested in finding out the source of my anemia. The second one on the other hand did do the biopsy. It came back negative for cancer but thinks the source of the anemia is my kidneys. No definitive answer for my anemia. I have some answers but I still have more questions. I continue to research, and I most definitely ask questions to my specialists when something new pops up with what's happening with me.

I'm guessing she's in early to mid-forties age range, which is young to me. And yes, she is definitely seeking out an immunologist with focus on the immunoglobins (not easy to find those that have interest in the IG category, but I know she is determined. She is very tolerant of my overkill with lab & imaging results over past 5 yrs. I only share key info, but she is appreciative rather than disinterested. I have appt tomorrow and actually can't wait (who looks forward to doctor appts? Lol)

I never had an issue with flu or pneumonia or tetanus vaccines.

Dr. Doyle is a godsend. I have hit the jackpot! So very grateful.

I too have had an issue with my hematologist/oncologist not wanting to do a bone marrow biopsy. I have had all the tests listed in one of the posts. All of them are now normal. I have been dealing with anemia for quite some time. Back in September I was admitted into the hospital for 16 days and during that time I had so many tests and procedures done to me I can't name them all without looking at my medical records. Prior to September my labs were all normal (for me) and then beginning of september I had a considerable change and everything went in dramatic directions. I was eventually diagnosed with cryoglobulinemia and they said it was stemmed from my sjogrens. But now with all the doctors appointments and labs, my results are back to normal pre-september. I still have anemia and am not iron deficient. my red blood count is still low but now my white blood count is normal. They wont do a bone marrow biopsy to see why im not making more RBC. Because everything is normal they say theres nothing they can do. its frustrating. Im still fatigued (which Ive had that complaint for quite some time. I just want answers to prevent myself from being in the hospital again for 16 days.

Have you been to an immunologist ? Maybe go to a major hospital like Mayo Clinic or Johns Hopkins. Everyone I know who goes there is very satisfied with all their doctors. And I believe they work in "teams" which is so important and where I live unattainable because everyone is in a different "group" and they don't share nicely.

Hi jersey. So, I've been to big medical institutions and have found that bigger is not always better. Yet, I have also traveled 1,200 miles to see a specialist and am so glad I did. My point is that there's no "silver bullet" in my experience. What happened yesterday that upset me so much was the doctor I've been bragging about did something I can't accept. She ordered a stool specimen - great! But she didn't have it checked for blood. What!!@ My HGB and Iron have been #1 health issue for 5 yrs. My stools have been black and tarry for months now, along with severe diarrhea lasting 6 mos straight. WHY would she NOT test for blood in stool?? Anyway, I don't plan to wallow in it. She's still going to be my PCP. I have appt with a highly recommended gastroenterologist on Feb 27th. Haven't seen immunologist yet. I'm sorry for venting!! I put way too much hope in this doctor that I had only seen 3x. She's not perfect but also not a bad person. I just feel my life is passing me by while I keep trying to get my health back. But today is a better day. I'm not giving up!! Ty 💗

Correction...I meant to say I'm having bone density test done in 2 days.