Susan, I'm so sorry to hear you're going through all this. I have Graves' Disease (autoimmune hyperthyroidism), which was diagnosed with a radioactive iodine scan. I had lost 25 lbs. before I was diagnosed. But mine was a low TSH, and you mentioned you have a high TSH, which could be hypothyroidism. Both can be managed easily with medication. I also had Stage 1 Breast cancer, and I was so blessed it was caught early. I'm telling you all this because both of these times in my life were very challenging, but I got through both of them. Now, facing EPI is a huge challenge, but the support groups have been a lifesaver to help better understand the long road I have ahead to feel better. But I'm going to do my best to be as positive, patient and strong as I can be knowing there is light at the end of tunnel. You'll get through this, Susan! Sending you healing and positive thoughts.