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Extreme outer ear pain: What can it be?

Ear, Nose & Throat (ENT) | Last Active: Aug 8, 2023 | Replies (402)

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@bearylynn

Based on my experience, you may never get answer [or maybe you will???}

I believe I have a chronic, low grade infection - perhaps fungal or bacterial.
I have had great relief for a little while now {it feels wonderful to be able to sleep on my left side for the 1st time in so long}.
I've been recently using infrared heat to warm up multiple painful body locations, which happen to include ears, neck and sinuses, as well as LOTS of other areas on my EDS/body of chronic pain. At this time it is helpful.
I believe the heat kills whatever low-grade infection may be lingering in the area.

I will NOT give any advice about the heat therapy. I would leave the decisions related to the infrared heat use completely up to you and whatever you decide/discover/research on the topic.

Take note though, that many saunas use infrared as the heat source.

Good luck. Let me know if you ever do have any improvement if you know the reason for the improvement.

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Replies to "Based on my experience, you may never get answer [or maybe you will???} I believe I..."

It's called Relapsing Polychondritis. If your nose seems infected with it too. Also, can appear in other connective tissue. Can get biopsy of ear tissue which will confirm or not.

Eds body like Ehlers Danlos Syndrome ? I too have Ehlers Danlos and have had the extremely painful outer ears almost every night for years. I thought I had found the solution. Purple pillow. I could sleep on either side and no ear pain until I washed the cover and my pillowcase. Last night the intense pain returned. Don't know what to do.