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DiscussionExtreme outer ear pain: What can it be?
Ear, Nose & Throat (ENT) | Last Active: Aug 8, 2023 | Replies (402)Comment receiving replies
Replies to "Based on my experience, you may never get answer [or maybe you will???} I believe I..."
Eds body like Ehlers Danlos Syndrome ? I too have Ehlers Danlos and have had the extremely painful outer ears almost every night for years. I thought I had found the solution. Purple pillow. I could sleep on either side and no ear pain until I washed the cover and my pillowcase. Last night the intense pain returned. Don't know what to do.
It's called Relapsing Polychondritis. If your nose seems infected with it too. Also, can appear in other connective tissue. Can get biopsy of ear tissue which will confirm or not.