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Xywav Narcolepsy/Hypersomnia Med

Sleep Health | Last Active: Feb 2, 2023 | Replies (7)

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@timbrownfl

Hi, yes I am aware of that kind stuff, but I will certainly look at the link. My sleep neurologist thinks I should go with it. We will titrate the medication slowly under the supervision of the manufacturer. Their studies did not have a horrible incidence of side effects or accidental dosing, and they make you go through some training before starting the drug. I'm always careful about dosing, and they encourage you to set up ahead of time since the drug is taken at night. They will call me before I start.

I'm pretty desperate, John. Life starts in the a.m. with 4 to 5 hour increments of wakefulness separated by 1 to 1.5 hour naps, then regular sleep at night. The naps are followed by painful episodes of depression/anxiety and fear of the future. I have little time left for things like appointments and groceries. Psych meds have not helped much (I admitted myself to a hospital psych floor in '21). I'm sure you have a whole lot of knowledge about how sleep disorders affect mental health. Throw in my wife's breast cancer, and things very tough here. Thankfully she is receiving massive encouragement from her co-workers.

I hope I’m not taking too much risk with Xyway.

Time for a nap!

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Replies to "Hi, yes I am aware of that kind stuff, but I will certainly look at the..."

Thank you for the additional info. I know it can be a real struggle but it sounds like you have a pretty good sleep neurologist and a plan to keep moving forward. Hoping you can return and provide some great experiences with Xywav and how it helped you.