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post colectomy surgery
In may of 2011 my husbands colon was perorated during a colonoscopy. He ended up having two emergancy surgeries which resulted in the removal of his colon. There was suppossed to be a take down surgery don within a couple of months and that has yet to happen. He sleeps about 20 hours a day, has bouts of discharge and overall has no life and the doctors can tell us nothing
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Although I do not know all the details about your husband, something about your post made me want to reply. I too have had my colon removed and went through some tough times. It was both physically and emotionally draining. My guess is your husband is sleeping as much as he is because of both his physical and emotional state. I had the same issues. To help with my physical issues, I tried to listen to my doctor and my wife as much as I could. Sometimes that was difficult. I tried to stay as active as I could, which was really difficult. The pain and depression made me want to just stay in bed. I started seeing a psychiatrist, which was not as helpful as I thought it would be but I would still recommend it. The psychiatrist put me on Ritalin, which would occasionally give me a boost in energy. I would recommend that. He also put me on an anti-depressant. It was a low dose, and I am not sure it did anything.
So here is my advise:
Be strong for your husband and give him some space if he needs it. Do not pressure him too much, he understands his responsibilities and is feeling bad already that he is not as active in the family as he wishes he could be.
See this as temporary. Believe in your husband's strength and know that there are better days ahead. Let him know that you believe he is going to get better, and your lives can return to normal. Mine has.
Your part is huge right now. It may feel you are running the family on your own. Accept it and do the best that you can. It is only temporary.
See if he will see a psychologist.
Good luck, it will get better after some time.
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1 ReactionThank you for reading my post. It will be two years in May. Currently they have my husband on prednisone, lisinopril and prozac. Prior to the prozac taking effect he litterally was driving my daughter and me out of the house and into a divorce. His extreme anger, while justified was being directed at us. Like I said now that the prozac has taken effect he is again loving and appreciative of his family. He is receiving remicade infusions on a prescribed schedule and that with three of the other drugs all have the same side effects of causing a feeling of exhaustion and breathlessness. I do believe he'll get better, I pray everyday, several times. how long were you down and if I may ask what type of symptoms did you experiance post surgery, don't be shy, I can take it, beleive me! Thanks again!
After my complete colectomy, I had an ileostomy. Then I had that reversed. After the reversal, I could not eat and lost around 40 pounds. I got a pic line put in and I was receiving nutrition through TPN (Total Parenteral Nutrition). I had one more surgery after that (Total of 4), which eventually got me eating again. I would say that all happened in a 2 and a half year span. My issues started when my son was only a year old (he is 3 and a half now). One of my favorite things in life is to read my son stories before bedtime, and there was a long time when I could not even do that. The Ritalin helped me to have the energy to play with him at times. After I was able to eat on my own, I started to put on weight. I got off the anti-depressants. Stopped taking the Ritalin. Got my energy back, and now I am very close to my normal self. I continue to be on Remicade and sometimes get Iron infusions as well. I feel great, I will be starting a new job in a week, and my wife and I are going to have another baby. Things are as well as can be now, but it was a tough road to get here.
Thank you and God Bless you and your family