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My platelets are 120000

Blood Cancers & Disorders | Last Active: Jan 28, 2023 | Replies (14)

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@darlaburley

I wish I could give you some of my platelets! Mine are running 500 plus up to 800. As far as the hemoglobin, mine, when this all started was around 5 -6. I couldn't even take a little bag of trash to the curb without stopping to lean against the house as I was so fatigued. Oncologist said I had MDS. I was given Revlimid (a mere $19,000) a month. It took years for my hemoglobin to get up to 12/15 but it finally did and it stayed. Then I was told I no longer had MDS but now my platelets are sky high and they won't come down and stay down. I'm on 2 different meds that make me feel awful. The doctor has no other help for me. A stroke or heart attack are in my future with the high platelets. Let us know what happens.

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Replies to "I wish I could give you some of my platelets! Mine are running 500 plus up..."

Thank you for your comments, I go to the cancer center Monday, Wednesday and Friday to get my blood drawn and get blood or platelets if my numbers are low. I was on on one med but the side effects were so bad the Dr took me off of it. I hope you can get some help.