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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 21 hours ago | Replies (704)Comment receiving replies
I was diagnosed with hcm in October 2021 at the age of 62. I started the Camzyos in June 2022. My dr and I both had to get in rolled in the rems program. ( I am NOT in the trial program) I had good results from the medication right away . Before Camzyos I was napping a lot during the day.I am now able to go without any nap some days or just one nap. I am able to participate in life now. I still do have to watch what I do and not over do things. But I am able to do things which is so nice. It has made a big difference for me. My copay for the Camzyos is $10.00 a month . They really want to make sure everyone who needs this medicine can be on it . They also do cover the fee for my echocardiograms. I am so thankful for Camzyos it has given me back some of my energy. The doctor does not hear a murmur anymore and the the people that do my echocardiograms are amazed at the difference they see also.
Replies to "I was diagnosed with hcm in October 2021 at the age of 62. I started the..."
I would really like you to know how much I appreciate your comments about this medication. My husband has HCM. it took forever to get this diagnosis. Hopefully he can get relief from his symptoms once his cardiologist prescribes this.
I am karen317 I wrote in a year ago . I thought I would give you an update. I am still doing very well on the Camzyos. I also was very hesitant about taking the medications especially with the risks. My personal thought was I wasn’t living much of a life wanting to nap all the time so it was well worth the risk. Fast forward I have been on the medication for almost 2 years now . I am still doing really well . My drs and the echo cardio gram crew are all amazed at what they see in my tests . Main thing I feel better I am able to do things I would not of been able to before the medication. Right now I am babysitting for my 3year old granddaughter and 6 month old twin grand babies every week day. I also am taking my elderly mom to physical therapy 2times a week and her to her dr appointments . I am exhausted at night but I am able to help my loved ones. I know there is no way I could be doing this without Camzyos . I just want to say to anyone thinking about trying it and your cardiologist feels you are a candidate to really think about it and weigh your pros and cons . I am so thankful for the Camzyos.
P.s. I also think getting the echos every 3 mos gives the drs and myself comfort in how I am doing . We will know right away and take the right steps
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I really appreciate you reply. I will be starting on Camzyos in the next week or so. I was hesitant initially because it is such a new medication but I have decided to go ahead. I will post my comments on this forum in the next little while when I see how this works out for me!