Eyes and Neuropathy

Rachel,
I still have the burning, pin pricks and palpitations. My eyes really bother me. I am still seeing the Neuro opthalmologist who will check the nerves in my eyes along with other things. I have been having fasciculations that just started up. Have had one or two here or there but It is funny because they are on one side. I have been having them in my left eye lid, the top of my head on the left and my left leg. I noticed when the small nerve fiber first started and the pricks were going off all over that they would sometimes be all on one side and sometimes the other and then just all over. I do get the palpitations which I am taking magnesium and they come and go. I had them when I was younger but they were different. I gave up most all caffeine but will have some occasionally. I know that caffeine can make them worse but. I have had some caffeine and don't have them then they suddenly show up. I had to get a new Dr. recently a general practitioner and I am up in the air about her. I told her on the first visit that I was anemic last year and I had taken something for it. My bloodwork was checked by my other Dr. and it was back to normal. My new Dr. did bloodwork and I looked it up on the patient portal. I saw reds and was concerned. I had to call them. I got a call back and they said I am slightly anemic. They didn't say to do anything until my visit. I hate waiting. I could have just started up the optiferin C again. I am losing my trust in the medical community. I have never ever had to call the Dr. I always get a call whether the blood work is good or bad. I am upset about that. I have idiopathic SNF. I have read up on all of this. I am repeating myself from before but last year in March I decided to retire from work. Two days later I woke up with diffuse pinpricks all over. Then in April I woke up on a Sunday and felt strange sensation in my chest and I thought to myself that it was palpitations but it wasn't. After a heart monitor it showed my heart rate was 183. I had other tests and nothing showed up for a cause for the increased heart rate. If I am correct the SNF can affect the autonomic nervous system. I did ask my Dr. about a referral to Mayo and she basically said she wants me to go back to the neuro Dr. again and if they can't find anything she might get me a referral. She basically said that a lot of money could be wasted for nothing. That ticked me off. The hardest part about all of this is not knowing. I try not to think about what is coming next. I did connect with a group of people that had their coronavirus shots and some of them started with symptoms like mine. Some had symptoms right after the shot but I was curious and asked if others who had the shots had them after and how long after. I was not surprised. I wondered if mine could be caused by that. I am not reading much about anyone that is checking into that. I would love to go to the Mayo Clinic and see if they could come up with anything or could give me more information. I was checked by neuro for heavy metals, some of the autoimmune, and genetics. Nothing has been found. My Dr. is associated with Baptist hospital here and they are affiliated with Mayo. Do you know if my doctor were to send my records to Mayo and request an appt could they turn me down? I consider myself luckier then most to have what I have and not what others have. I thought Mayo would be a good place to go because the Doctors may know more than the Doctors that I have been seeing. My last visit to my neurologist he said," well we know there is a cause we just don't know what it is". UGH! I know what medications are and what they are used for but lately I want to chuck them all. I am taking metoprolol for my heart rate but it can cause palpitations. Hah!. I have to take pantoprazole for silent chronic acid reflux and chronic gastritis. I have take it for two years. All my dexa scans have been good up until the last one. I was told from the beginning that it could cause osteoporosis. Well I know have osteopenia. It is very frustrating!!!!

I am extremely sensitive to light. A fog grows more dense the longer I am exposed to light. I am having difficulty reading this screen due to the light background of the black letters. The longer I look at it the worse it becomes.
I had Covid in October 2021. This is when the problem exacerbated. It started immediately after cataract surgery December 2020. I was not warned of this effect or I would not have had the surgery.
Dry eyes were sever, but much better using Tyrvaya nos spray. It works for me!
My ophthalmologist says there is nothing wrong with my eyes. I tell him it is in my brain and I want a referral to a neuro-opthomologist. He said he would see if he could find one. Have not heard from him in over a month.
Help! I am at wits end.

Hi @daviddennis123, Sorry to hear about your vision problem. You mentioned that it started after your cataract surgery. You might want to contact the surgeon who did your cataract surgery. I think blurry vision is a fairly common occurrence after cataract surgery with 15 to 20% of people who had the surgery. I had the problem with my right eye a year or so after my cataract surgery and the surgeon performed a YAG capsulotomy which correct the vision problem. Here's some information on the topic:
-- Blurred Vision After Cataract Surgery: What’s Normal and What’s Not?
https://www.healthline.com/health/eye-health/blurred-vision-after-cataract-surgery

Vision is foggy, not blurred. There is a difference. Blurred will improve by squinting, not so with foggy.
Laser was not indicated. It was discussed. My problem is in my brain, not my eye.
Light makes it worse to the point I cannot read or see to put drops in my eyes. I have to feel the liquid touch my lid or eyeball.

Did your ophthalmologist do your cataract surgery? Blurry, foggy, cloudy can pretty mean the same thing and I was also sensitive to light.

" The most common reason for performing an Nd:YAG laser capsulotomy is when significant fibrosis, wrinkling, or opacification of the posterior capsule occurs. When PCO causes decreased vision, glare, or difficulties with visual function, a laser capsulotomy is indicated."
-- When To YAG and When Not To: https://crstoday.com/articles/may-2021/when-to-yag-and-when-not-to

Thanks for the info. I read it.
My doc assured me there is nothing wrong with my eye.
From what I have read it is caused as the result of Long Covid syndrome.
My doc is at a loss how to treat it. He is frustrated as I am.
I want to see a neuro- opthomologist, but he does not know where there is one. He said last month he would look into it. Have not heard from him.