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Paralyzed Diaphragm

Lung Health | Last Active: Sep 28 3:59pm | Replies (338)

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@seniordon09

I was int the hospital with a blood clot that went thru my lungs !
After a week in the hospital, I was moved to another hospital for physical therapy !
One night I was bored, so I walked to the nurses station and I almost didn't make it back to my room because I couldn't breathe !
The next day the doctor said I had asthma, but he was so wrong and after another week went by, I found out that the left side of diaphragm was paralyzed !!
I had surgery to put stitches across it !
I've been battling with shortness of breath ever since !
I've made numerous trips to the ER because I thought that I was taking my last breath ! FRIGHTENED !!
Donald Goss

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Replies to "I was int the hospital with a blood clot that went thru my lungs ! After..."

Don -- this is pretty scary. I strongly urge you to join the facebook page for people with paralyzed diaphragms. There are over 1100 people on it now who have paralyzed diaphragms and hundreds who have had the plication surgery you had where the surgeons sew pleats to hold the paralyzed diaphragm down. The knowledge these people have based on first hand experience and their own research is amazing. They are so supportive and answer any and all questions. Most doctors don't know much about paralyzed diaphragms, and a universal complaint is surgeons don't tell you anything about how to recover from plication surgery. People on the facebook group can help you through it. I thought facebook was a waste of time but joined it just to join this group. It was a really smart decision for me. Did they cut your chest open or use robots and minimally invasive techniques? The method of the operation will greatly determine your recovery. I hope your recovery will go well. Best wishes!

Don -- one other thought. You might get a chest x-ray to see if your diaphragm is still stitched down. The stitches might not have held. One person on the FB page said the stitching material his surgeon used was faulty and the surgeon had to redo the procedure the next day. Hard to believe, but it evidently happened. Some plication surgeries don't hold. Good luck! Nancy