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@renecurro

Please, anyone with very serious breathing conditions stemming from phrenic nerve (for any cause) miss/malfunctioning, share whatever you can. I have strong diaphragm spasms (“mega-hiccups”) that if not stopped conduce to the entire diaphragm “disappearing”. To make it much worse, very potentially lethal, my intercostal muscles go “out of commission”…but the phrenic nerve has nothing to do with the latter muscles. I don’t feel asphyxia or anything like that; feel nothing but, only in my head, the deprivation of oxygen… as my vision goes dark as in gradually fainting. Immediate CPR with a sublingual TINY tablet of OTC candy laced with peppermint (e.g., altoids) gets me out of it. By the way the sublingual peppermint tablet stops the whole process but only when still in the mega-hiccups phase… which occur irregularly-sporadically, anywhere, anytime, triggered, usually by swallowing anything including saliva, or even without swallowing anything. I have an old serious lesion (from teenager Greco-Roman wrestling) on C3-C4 that, a neurosurgeon suggested, may be affecting the phrenic nerve, in turn affecting the entire diaphragm, by he couldn’t say anything regarding the intercostal muscles. Idiopathic causes is all what all specialists that have seen me “diagnose” and don’t give me treatment (even the neurosurgeon advised me to stay away from surgery ). Boxes of those tablets are in every single room in my house, including garage, shed, backyard, in my pockets, and never leave home without the little tablets… and without my wife, who is very well trained and has robust practice on CPR. I take a daily 50 mg “pearl” of OTC peppermint oil, and “deploy” a sublingual big tablet before even starting the car…always with my wife in the passenger seat. I drive only on backroads; my wife does any other driving.

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Replies to "Please, anyone with very serious breathing conditions stemming from phrenic nerve (for any cause) miss/malfunctioning, share..."

Hello @renecurro and welcome to Mayo Clinic Connect. This has obviously completely impacted your daily life and I can read how scary this has been for you, and likely your wife.

You will see that I moved your post into an existing discussion that you can find here:
- Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?: https://connect.mayoclinic.org/discussion/phoenix-nerve-damage/

I did this with hopes that you will be able to connect with members like @suziesunshine69 and @toby77 who have been sharing with one another as well.

Is your goal to find better care and/or treatment options at this point?

A paralyzed or weakened diaphragm can be a symptom of a neuromuscular disease or some other disease. Thus, it's important to rule out possible underlying root causes of your diaphragm problems before you or your doctors just decide you have a paralyzed diaphragm with an unknown origin and resort to surgery. Since you mentioned the impact on your muscles, I really recommend you see a doctor who knows about ALS and other neuromuscular diseases. I'm confident my paralyzed diaphragm is not a symptom of something else and have a whole list of things that could have caused it: accidents, vaccinations, viruses, x-rays, etc. I hope you will keep us posted...best wishes!