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Blood Cancers & Disorders | Last Active: Aug 1 9:05am | Replies (16)
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My platelets go as low as 7 I have to get platelets at least once a week and my hemoglobin is about 8 to 9 I also get blood once a week . My doctor is trying to find out what is causing this. He is treating me for aplastic anemia , not sure if that is the problem. Wish we could get an answer to this problem. Sylvia
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I wish I could give you some of my platelets! Mine are running 500 plus up to 800. As far as the hemoglobin, mine, when this all started was around 5 -6. I couldn't even take a little bag of trash to the curb without stopping to lean against the house as I was so fatigued. Oncologist said I had MDS. I was given Revlimid (a mere $19,000) a month. It took years for my hemoglobin to get up to 12/15 but it finally did and it stayed. Then I was told I no longer had MDS but now my platelets are sky high and they won't come down and stay down. I'm on 2 different meds that make me feel awful. The doctor has no other help for me. A stroke or heart attack are in my future with the high platelets. Let us know what happens.