Mesenteric Panniculitis or Sclerosing Mesenteritis

Hi there, did not see my gastro only had telephone consultation to review CT scan. He thinks I have IBS not pannaculitis . No other system except this pain I have down low in my right side every night between 3 am and 5 am. I rub my hysterectomy scar and I seem to get relief, I get up, I hope I have gas as it relieves the pain I go to bathroom and pain is gone until next morning. I see no correlation with food I eat. He told me to take metamuscil, which I am doing but not sure why? Told me to stop taking my 5 prunes a day to help me keep stool soft it certainly has made my bowel movements a better consistency. I think it could be adhesions from my hysto and ruptured appendix and gullbladder but I am not a doctor. P#in us right over the cecum valve but when I mentioned that he just poopooed it away. I may call your doctor Armstrong and see what he says. Also might look into the massaging thing. I think it is called clear passage. Anyway not any better off mentally or physically. Talk again, hope you are fine!

Hi @ellenos, I add my welcome. You may also be interested in following the Kidney group here: https://connect.mayoclinic.org/group/kidney-conditions/

All the best with your GI appointment next week. Have you started to organize your questions in a list?

@nancykeenan, it sounds like you have some lingering questions since your phone consultation with your gastro. Do you have access to a patient portal or nurse with this gastro to get clarification?

Thanks for responding. I am not sure what you are asking me. I am from Ontario, not sure what a patient portal is? Or whose nurse. Sorry but I only have my family doctor. Can you help me understand? Thx

I just had a CT this morning that showed mild mesenteric panniculitis. Very severe right pain particularly at night for a week or so, xray showed a possible kidney stone. CT showed no kidney stone, just MP. Given the struggles here to get diagnosed, I am quite impressed that this was done so quickly. I have an appt with a local gastroenterologist next week. Reading these comments has been very helpful, thank you! Since I thought it was a kidney stone, I followed the suggestion of not sleeping on my side, that helped the pain. I don't have any underlying illness that I know of so starting out is a bit scary. I am 68 yr old female, live outside of Boston.

Hi there ellenons, you pls let me know what your gastro doctor said. I was diagnosed with CT scan with panniculitus and I have pain or discomfort every night between 3-5 am have a bowel movement and it goes away until next night. When my gastro doctor saw it said I have IBS. Will be interested in your doctors opinion....will watch fir your response. Thanks Nancy

@ellenos is that the only time you have it? As soon as I can have a bowel movement mine goes away until next night.....I have no other symptoms at all. I can pretty well eat what I want even....I will be waiting with interest to see what your doctor says. Ask if it could be IBS if they found nothing else wrong.

@nancykeenan, some doctors have online services where you can submit a followup question. I know of some family health team in Ontario that do this. I thought that you might be seeing a gastro specialist and sometimes they have number you can call for followup questions. Since you are in Ontario, you should contact your doctor to get clarification on your questions as OHIP insurance will cover the cost of the followup phone call or visit.