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Essential Thrombocythemia (ET) and viruses

Blood Cancers & Disorders | Last Active: Dec 13, 2023 | Replies (53)

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@wiggins32

Hi Victoria. My heart skipped a beat when I read your post, specifically about the "bone pain in shin". In 2022, joint pain went into overdrive. But in past 2 months, both shin bones are very painful even at night when trying to sleep. I haven't done anything different so no explanation there. I've told my Internist a few times. She ordered bone density = normal. I have severe iron deficiency anemia and get infusions every 3 months or so (unknown cause). I also have shortness of breath, but that's usually from IDA when my iron has crashed. The bone pain is worrisome! I'm used to joint pain with osteoarthritis but never bones. I need to Google your condition to see if it connects with some of my other symptoms. Ty for sharing. I would love to know more!

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Replies to "Hi Victoria. My heart skipped a beat when I read your post, specifically about the "bone..."

Hi Victoria
I had ankle and foot pain before my diagnosis. Once on hydroxyurea the pain went away. I also drink electrolytes that have helped me alot. Use to get migraine 2 a week before electrolytes.