← Return to possible focal/partial or non-convulsive status epilepticus
Discussionpossible focal/partial or non-convulsive status epilepticus
Epilepsy & Seizures | Last Active: Jan 26, 2023 | Replies (26)Comment receiving replies
Replies to "@mamadukes10 Good morning from Calif., Can you describe what exactly you feel “coming on”? If you're..."
Hi Jake, I have more than ten Focal Onsets annually and they are all alike. It all started with one or per year, but increased when changing AED's. My warning sign is a quite relaxing feeling originating in my pelvis area i.e. underbelly. It is not painful at all, rather pleasant even. It travels upward in seconds and expands all over my upper body. I can just hear my spouse trying to get my attention (when she's around, bless her) without me replying. I feel a freezing sensation and recording stops. During the interval (3 to 5 minutes) I record no memories, start fidgetting, mumbling and stare.
Sometimes I even keep walking while following a footpath, so it is more than unconsiousness, or so I thought. Lately a typical Focal happened to me behind the wheel, causing an accident (scraping the crash barrier, no-one got hurt). Ambulance called it a miracle. This made me seek advice from an epileptologist (Kempenhaeghe, as I am Dutch). Wish you well, sorry for this update. It is the truth...