← Return to possible focal/partial or non-convulsive status epilepticus

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@jakedduck1

@mamadukes10
Good morning from Calif.,
Can you describe what exactly you feel “coming on”?
If you're feeling an Aura you are having a seizure known as a Focal Aware Seizure previously called Simple Partial. what does your doctor say about driving?
Good you pull over when these feelings strike but if they are seizure related you may not always have that warning.
I hope you'll keep us informed.
have you had an MRI and EEG and blood tests yet?
Take care,
Jake

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Replies to "@mamadukes10 Good morning from Calif., Can you describe what exactly you feel “coming on”? If you're..."

Hi Jake, I have more than ten Focal Onsets annually and they are all alike. It all started with one or per year, but increased when changing AED's. My warning sign is a quite relaxing feeling originating in my pelvis area i.e. underbelly. It is not painful at all, rather pleasant even. It travels upward in seconds and expands all over my upper body. I can just hear my spouse trying to get my attention (when she's around, bless her) without me replying. I feel a freezing sensation and recording stops. During the interval (3 to 5 minutes) I record no memories, start fidgetting, mumbling and stare.
Sometimes I even keep walking while following a footpath, so it is more than unconsiousness, or so I thought. Lately a typical Focal happened to me behind the wheel, causing an accident (scraping the crash barrier, no-one got hurt). Ambulance called it a miracle. This made me seek advice from an epileptologist (Kempenhaeghe, as I am Dutch). Wish you well, sorry for this update. It is the truth...