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Grover’s Disease

Skin Health | Last Active: Jul 31 6:35am | Replies (110)

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@bjv8080

Not enough people have Grover’s, ergo there’s scant research done on the disease. I was first diagnosed in the 1970s, and have been biopsies multiple times by various dermatologists over that time.

Only two treatments have been effective—Prednisone and Photo Therapy. Prednisone is temporary and carries side effects. Photo Therapy has kept mine under control for several years.

I visit the VA Hospital in Philadelphia once a week and stand in the light booth for two minutes. That keeps my skin clear. I surprised more dermatologists are not providing nor recommending this.

My guess is it’s an insurance/money concern.

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Replies to "Not enough people have Grover’s, ergo there’s scant research done on the disease. I was first..."

Hey BJV8080. Know anything about Red Light Therapy? What color are the lights your working with? Are you surrounded by lights? Local business has one strip of red lights, so not sure if I have to rotate myself or what. Much co-pay involved? TIA