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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Mitsy - I have these issues as well as my main symptoms, I was diagnosed in May and confirmed with a follow up scan in November (also have had Hashimotos since childhood so this is my second autoimmune disease), now my primary doc had bounced me back to my GI, who has no openings for appointments for two months, very frustrating. What has your husband tried for relief??? I would also like to know which tests he had at Mayo since I am seriously considering going there, also which meds since I am very apprehensive about taking a steroid, thanks!
Anne
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He had Multiple CT scans, Pet scans Upper GI, XRays etc ( Dr’s here were even advising exploratory surgery but didn’t ) all done here but no one here could figure out what it was- Saw a pulmonologist & gastroenterologist at Mayo- blood test , breathing test, x-rays, & another CT - diagnosed within 2 days- he’s been on prednisone prior & didn’t help- gastroenterologist put him on colchicine- it’s starting to work & after only a week we’re seeing the start of the bloating going down & he’s breathing a little better even though it’s a slight improvement we’re hopeful!