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Low Platelets with Myelodysplastic Syndrome (MDS)

Blood Cancers & Disorders | Last Active: Jan 24, 2023 | Replies (39)
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@marcyjo

I too have MDS. Mainly my red blood cells are affected but he does watch my platelets and for that matter all my counts. When I ask questions he doesn't hesitate to answer but unfortunately I don't know what to ask! When I read online I know the things to ask. His staff is also very helpful. Reach out to your Dr please? If you don't feel comfortable talking to them find a new Dr.

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Replies to "I too have MDS. Mainly my red blood cells are affected but he does watch my..."
Lori, Volunteer Mentor | @loribmt | Jan 24, 2023

Hi @marcyjo, Welcome to Mayo Clinic Connect. I’m happy you found us. There are several discussions in the forum with members who also have Myelodysplastic syndrome, (MDS). I’ve posted several links below where you can connect with members such as @davidkreuser who was diagnosed in Jan 22, and @kjjjrader whose husband has MDS.
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MDS
https://connect.mayoclinic.org/discussion/myelodysplastic-syndrome-mds-1/
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I have been diagnosed and under treatment for MDS:
https://connect.mayoclinic.org/discussion/i-have-been-diagnosed-and-under-treatment-for-mds-whag-are-the/
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MDS: How to increase red blood cells.
https://connect.mayoclinic.org/discussion/mds/
It’s wonderful to see that you have such a good comfort level with your doctor and his staff. Having that positive rapport and trust really go a long way to keep the stress level down when you’re dealing with a medical condition.
How long ago were you diagnosed? Are you currently on any treatment for your MDS?

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