Connect
← Return to Anyone take new drug Camzyos (mavacamten) for HCM?
Discussion
Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (878)Comment receiving replies
Terry - I greatly appreciate your response. Nothing is better than a candid review from someone in the same situation. This is such a new drug, and I can get a little obsessed with "due diligence". I am nearly certain that I will try Camzyos and I will give feedback on this forum for others. Thanks for your "testimonial"!
Replies to "Terry - I greatly appreciate your response. Nothing is better than a candid review from someone..."
Connect
@jess51
Hi Jess, I am a 69 year old, female. This is not genetic. I am on my second month of Camzyos and I feel much better. A few weeks ago I took my Covid and flu Vaccine at the same time and the next day I was in the emergency room for arrhythmia. I do not know if was the shots were too strong or this is from obstructed HCM. My doctor in Memphis did not say. I do go to exercise 3 times a week. I take Amiodarone twice a day. I am feeling tired. I go back to him next week. Since they do not treat HCM in Memphis I drive to St. Louis for my echo’s . I would like to have a buddy to go through this with me. I found out I had HCM 7 months ago. I went to get a cataract done ( it was fine) but ended up in the hospital that night for fluid in my lungs. This is my journey so far.