Stage 4 Lung Cancer with Mets to Spine: Any advice on treatment, diet?

Posted by mrose1717 @mrose1717, Jan 1, 2023

My Dad had a fusion c5 and the biopsy determined that he had 4th stage lung cancer that spread to his spine. Is there any advice, treatments or diet that anyone can recommend. Thank you

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@mrose1717

Here's the biopsy

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That is the report from the PET scan. Sorry to see that he’s going through this, it’s so difficult.
The doctor should order testing on a sample of his cancerous tissue, lymph node fluid, or even just blood. That can be analyzed to determine what’s driving the cancer, it’s generally called “biomarker testing”. Many hospitals won’t do this analysis in their own lab, it often gets sent to an off site lab, and can take a couple of weeks for the results to come back. So maybe it’s just not ready yet. It can be critical in guiding treatment decisions, in my opinion.
I’m a patient, but don’t have a formal clinical background, that’s my disclaimer. : )
Take care, Lisa
https://lcfamerica.org/lung-cancer-info/diagnosis/biomarker-testing/

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@mrose1717

Dear all,

He gets a call from the oncologist that he has stage 4 and it's no big deal for him...hes Wild Bill. He's been a member of Shriners and Masons for years. Always giving back the the community. Remember watching him in the Michiana parade riding a go cart with his high hat for the shriners. Never smoked a day in his life and now has Lung cancer. I love my Dad. Thank you all for all your support.

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Priceless and my Prayers be with you and your family.

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@mrose1717

Here's the biopsy

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@mrose1717, please note that I removed the test results attached with your message. Connect is a public forum. If you wish to post test results, please make sure that personal identifying information is removed, such as patient name, identification number, address, hospital etc. This is to ensure patient privacy and security.

Did your dad ask about bio-marker testing?

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@lls8000

He looks delightful!, young-ish, healthy and a never-smoker, he may have a mutation driving the cancer. Are his biopsy results back yet? They should have done biomarker testing, looking for a mutation, which can drive the treatment plan. This has the potential to be a game changer in treatment, and quality of life.
Take care, Lisa
(ALK Positive, stage IV, 3/2020)

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I'd this the biopsy

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@colleenyoung

@mrose1717, please note that I removed the test results attached with your message. Connect is a public forum. If you wish to post test results, please make sure that personal identifying information is removed, such as patient name, identification number, address, hospital etc. This is to ensure patient privacy and security.

Did your dad ask about bio-marker testing?

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Yes and that's what they gave them.

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@mrose1717

Yes and that's what they gave them.

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It sounds like you are looking for medical professional opinion on his biopsy report and questions about tumor markers. If yes, please contact Mayo Clinic for a second opinion with our experts: http://mayocl.in/1mtmR63

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@lls8000

He looks delightful!, young-ish, healthy and a never-smoker, he may have a mutation driving the cancer. Are his biopsy results back yet? They should have done biomarker testing, looking for a mutation, which can drive the treatment plan. This has the potential to be a game changer in treatment, and quality of life.
Take care, Lisa
(ALK Positive, stage IV, 3/2020)

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Thanks for your message!! I will ask my genetic doctor for this biomarker test. I have Lynch Syndrome and have had genetic testing done. This is interesting so thanks for the post.

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@mrose1717

Yes and that's what they gave them.

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How are you doing, @mrose1717? How is your dad doing?

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@colleenyoung

How are you doing, @mrose1717? How is your dad doing?

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The marker came back. Metastatic non-small cell lung cancer
Marker- PD-L1. He has a dietitian assigned and went thru his first radiation treatment. He has immunotherapy scheduled. The Doctors say he'll never get better or in remission. Also that the treatments won't end.

Thank you

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