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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: May 1, 2023 | Replies (471)Comment receiving replies
I’m a 76 year old woman who has had PD for about two years now. The most problematic issues I’ve experienced are fatigue and brain fog. I also have some tremors. I’ve tried Sinemet for months, but it seemed to cause more problems (e.g., dyskinesia) than it helped with. I’ve been taking LDN for two months now, so still assessing that. I’ve worked closely with my primary care physician and a neurologist.
I recently started taking Rasagiline.
My questions are:
1 - Has anyone found anything that has worked to reduce fatigue or brain fog?
2 - Has anyone tried LDN, and if so, what results have you experienced?
3 - Does anyone have positive experiences with any alternatives to Sinemet such as Rasagiline?
4 - Has anyone tried HIFU/MRgFUS for PD Tremors?
5 - Has anyone tried the experimental glove treatment for tremors?
Thank you!
Replies to "I’m a 76 year old woman who has had PD for about two years now. The..."
@edroz01 Hi, hope you're well today.
My fatigue was mainly due to RLS and Sinemet worked but during the wearing-off period I couldn't rest. My sleep was interrupted from about 2-4 AM every morning when I'd have to take another dose and wait for it to take effect. I found relief with the Neupro patch, which is a dopamine agonist and may be less likely to cause dyskinesia. Since I get a continuous dose of medicine, my sleep is not interrupted and I feel a lot less fatigue and brain fog.
In regard to tremors, I'm not aware of anything that eliminates them. Both Sinemet and Neupro decreased my tremors significantly but neither got rid of them entirely.
Hope you can find something that helps with your most troublesome symptoms.
Take care!
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Hello @edroz01 and welcome to Mayo Clinic Connect. I think it is great you've joined to learn from others with regard to their Parkinson's journey. In order to better connect you with members, you will see that I have moved your post into the welcome discussion, which you can find here:
- Living with Parkinson's Disease - Meet others & come say hi: https://connect.mayoclinic.org/discussion/living-with-parkinsons-disease-meet-others-come-say-hi/
Members like @rwinney @patriciajean @1died2x and @hopeful33250 may be able to come in and share what they have learned with you.
Which treatments are you leaning toward?