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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Jess: I am a 73 year old male with a long standing diagnosis of Obstructive HCM. Over time my HCM progressed and I experienced the expected symptoms and clinical data of progressive heart failure. I am otherwise in generally good health, but my heart condition required significant and frustrating adjustments to my activities of daily living.
GOOD NEWS! I began Camzyos in May 2022. After three daily 5mg doses all symptoms were gone. I thought it was psychosomatic! Now after 7 months all is still excellent and after a couple of months the dosage was reduced to 2.5mg daily. I have been under a very strict protocol of monitoring and testing (MD visits, echos, and EKG).
Camzyos does not work for everyone and might he dangerous for some. But it is worth a try under expert supervision and careful follow up.
Camzyos has been a life changer for me! I can only thank God, my cardiology specialist in HCM, and his team in Memphis, Tn. And, the increadible brains that invented this new drug!
Peace!
Replies to "Jess: I am a 73 year old male with a long standing diagnosis of Obstructive HCM...."
Thank you for sharing your experience @captainterry. I have been advised by my Cardiologist to take this medication as one of the options. I am trying to weigh my options and determine should I go ahead with this medication or opt for alcohol septal ablation? I am 40 years male.
HI Jess, Thank you for sharing. I am 54 years old and I too started taking Camzyos in June 2023. It has done wonders for me as well. I started at 5mg and was increase to 10mg after 3 months f close monitoring. I have been able to go back to my normal way of life without any complications. Like you, it has changed my life as well.
I too am delighted with less symptoms after taking Camzyos for 1 1/2 months. After less than a week, initially, I had noticeable improvement.
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Terry - I greatly appreciate your response. Nothing is better than a candid review from someone in the same situation. This is such a new drug, and I can get a little obsessed with "due diligence". I am nearly certain that I will try Camzyos and I will give feedback on this forum for others. Thanks for your "testimonial"!