Connect
← Return to Anyone take new drug Camzyos (mavacamten) for HCM?
Discussion
Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (807)Comment receiving replies
Jess: I am a 73 year old male with a long standing diagnosis of Obstructive HCM. Over time my HCM progressed and I experienced the expected symptoms and clinical data of progressive heart failure. I am otherwise in generally good health, but my heart condition required significant and frustrating adjustments to my activities of daily living.
GOOD NEWS! I began Camzyos in May 2022. After three daily 5mg doses all symptoms were gone. I thought it was psychosomatic! Now after 7 months all is still excellent and after a couple of months the dosage was reduced to 2.5mg daily. I have been under a very strict protocol of monitoring and testing (MD visits, echos, and EKG).
Camzyos does not work for everyone and might he dangerous for some. But it is worth a try under expert supervision and careful follow up.
Camzyos has been a life changer for me! I can only thank God, my cardiology specialist in HCM, and his team in Memphis, Tn. And, the increadible brains that invented this new drug!
Peace!
Replies to "Jess: I am a 73 year old male with a long standing diagnosis of Obstructive HCM...."
Thank you for sharing your experience @captainterry. I have been advised by my Cardiologist to take this medication as one of the options. I am trying to weigh my options and determine should I go ahead with this medication or opt for alcohol septal ablation? I am 40 years male.
HI Jess, Thank you for sharing. I am 54 years old and I too started taking Camzyos in June 2023. It has done wonders for me as well. I started at 5mg and was increase to 10mg after 3 months f close monitoring. I have been able to go back to my normal way of life without any complications. Like you, it has changed my life as well.
I too am delighted with less symptoms after taking Camzyos for 1 1/2 months. After less than a week, initially, I had noticeable improvement.
I may be starting and have concerns too. Have you experienced any side effects such as headache. Also read I can’t take medication for heartburn such as Tagamet. Have you had to make changes because of Camzyos?
Can you comment on getting the medication, easy or frustrating as some others have mentioned.
Thank you.
Connect
Terry - I greatly appreciate your response. Nothing is better than a candid review from someone in the same situation. This is such a new drug, and I can get a little obsessed with "due diligence". I am nearly certain that I will try Camzyos and I will give feedback on this forum for others. Thanks for your "testimonial"!