I reversed osteoporosis without drugs

Posted by sheilad1 @sheilad1, Dec 28, 2022

I had my bone quality test yesterday along with another bone density test. This was my third bone density test in 14 months.

My first bone density test was Nov 2021.
I started consulting with different doctors. If I must take meds I would. But I had to get to the truth.
The physician who appeared to know the most is Keith McCormick DC the chiropractor who got osteoporosis at a very young age and really understands it.

That first DEXA scan showed I had mild osteoperosis of the spine, within the margin of error.
So no McCormick said to take the CTX (blood) test and a few others.
CTX was good.
My CTX shows that the osteoclasts are not breaking down too much bone. therefore, my next bone density test shouldn’t show that that I am much worse.

I decided not to wait until 2 years for another scan and took
I took another bone density (aka DEXA) scan 10/2022 to see if that was true about the CTX.
My spine was actually better in that scan and it was now osteopenia.
My hip was a little worse bringing it outside the margin of error. McCormick said this was a tough call so I said to him why don’t I get a bone quality test (that he told me about) and I figured that will buy me a little time anyway lol.

Unfortunately, the bone quality test only measures the spine.
Since it’s unusual for your spine to get better and your hip to get worse, it made me think - what have I done differently since the last test? Why would my spine improve but not my hip? What is my spine doing that my hip is not?

I decided it had to be the Supernatural virtual reality exercise app that I exercise to (on the oculus quest VR helmet). Even though I am striking the air, there actually is resistance, and I push hard to hit it as powerfully as I can.

I decided to put weights on my ankles. Everything I read says weight training should be once or twice a week, and I certainly only did it once.

Back to yesterday and the bone quality (TBS) test and yet another bone density (DEXA) test.
My hip was back to where it was on the first test. This put me back inside the margin of error where I would not have to take medication
This demonstrated to me that the CTX score did in fact mean I'm not losing density quickly.
Yesterday's test shows that my spine continued to improve and my bone density score was no longerosteopenia. It was normal. My bone quality test was great. The tech really loved it and called me over to show me how I was completely in the green meaning It was normal which is a little unusual at my age, 74, altogether.

I may be wrong about supernatural helping.
I’ll probably take the DEXA again in six months because I am anxious to see how the hip does, and if it improves even more.
And if so, I’ll turn myself into a study. 😂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@gigi4

From what I’ve learned, Calcium supplements are not absorbed well. I’m currently researching a calcium supplement from algae called Algaecal. But also add calcium from food sources daily to meet the daily requirement. Food sources include: heavy cream( if you add creamers to your coffee), chia seed pudding, cheddar cheese, avocado, eggs, broccoli rabe, amaranth, ricotta cheese, cooked spinach or kale, sweet potatoes, almonds, almond milk, oat milk, sesame seeds, canned salmon with bones, sardines with bones, or anchovies with bones. The bones are very soft. It takes discipline to add these food sources daily. What is helping me is having a drawer with the no refrigerator needed items all together, placing refrigerator needed items all together. That way it’s “not out of sight, out of mind”.

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Here is a more conventional list of foods with calcium:
https://health.clevelandclinic.org/calcium-rich-foods/

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@windyshores

@kirstenlheld so nice of you to provide such a detailed explanation of anti-resorptive and anabolics.

One thing I would take issue with is this sentence: "If you are fracturing a great deal, then it seems that taking bisphosphonates for a short while to help prevent further fractures is warranted. "

When we fracture I think a bone builder like Tymlos, Forteo or maybe Evenity would be a better approach than bisphosphonates 🙂

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You are probably correct. I can't remember exactly what he recommended but I thought he said something about someone fracturing one bone after another and having to take bisphosphonates temporarily just to try and stem the tide. In any case, I can't see a good reason for taking bisphosphonates in general. I mean,,,why not just go to something that builds more good bone rather than discourage the breakdown of bone that needs to be replaced?

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@windyshores

@leeosteo are you asking about bisphosphonates versus Tymlos for yourself, or are you asking me why I went on Tymlos? Your bones don't seem bad at all and you could possibly even wait for meds, according to some studies. My bones were in bad shape and I had fractures. So I needed a bone builder. I will follow with Reclast.

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Hi Windyshores. I wasn't aware of the severity of your circumstances when I asked the question. I'm not a doctor, however, I can see Tymlos was probably the right decision for you. My spine is -3.3 and femoral hip neck -2.7. My hip and forearm are progressing but still osteopenia. My doctor is putting me on Prolia (after dental work). I've been keeping a food log trying to identify a specific allergy. This highlighted my diet. Although I eat well (whole foods) I haven't been getting enough protein, fruit/veggies. I've now have a full court press on my diet and exercise regime. I'm hopeful this and Prolia would improve my overall numbers over time.

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@kirstenlheld

Here is what he says:

Basic core tests include:

Comprehensive metabolic panel (CMP)
Complete Blood Count (CBC)
Vitamin D (25(OH) D)
Urine pH - morning
Urine Calcium - either a calcium to creatinine ratio or a 24 hour urine calcium test
Celiac profile - consisting of anti-tissue transglutaminase and antigliadin antibodies.
Some form of bone resorption marker (NTX, CTX or DPD)

Minimal supplementation should include:

Multivitamin - mineral
Calcium - 1000-1200mg/day
Magnesium 500-600mg/day
Vitamin D3, 1000-2000 IU/day
Vitamin K - 1mg/day or more
Antioxidant supplement, broad spectrum product
Fish oil, 2-3 grams/daily
Flaxseed meal, 2-4 tbsp/day
Probiotics, 3-20 billion viable cells/day

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Is that " minimal supplementation" he recommends or are those his recommendations for daily requirements? If that calcium recommendation is for supplementation, it is very high as that is the total that is currently recommended of a combination of food and supplements with no more than 2000 mg a day max (and I'm reading more and more that the 1000-1200mg/daily combined is even high). Perhaps those were his total daily combined recommendations of nutrients obtained through food and supps?

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@teb

Is that " minimal supplementation" he recommends or are those his recommendations for daily requirements? If that calcium recommendation is for supplementation, it is very high as that is the total that is currently recommended of a combination of food and supplements with no more than 2000 mg a day max (and I'm reading more and more that the 1000-1200mg/daily combined is even high). Perhaps those were his total daily combined recommendations of nutrients obtained through food and supps?

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I don't recall off hand if he said that was total being food and supplements or supplements only. My guess is supplements only. It's increasingly difficult to get everything we need from food as the amounts of vitamins and minerals found in fruits and vegetables in much less than it used to be because of depletion in the soils they're grown in. I know for myself, I have a very slow metabolism and just don't eat that much food. Consequently, it is impossible for me to get some of the nutrients I supposedly need from my diet alone.

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Can anyone tell me how this makes sense? “ If patients are left untreated for osteoporosis, their bone density will increase rapidly. ” Isn't the point of taking Fosamax, calcium, etc., to increase BMD? Is it a typo? The rest of the article, though discouraging, made sense. The article is from a legit source: NIH (the National Library of Medicine). Its title: “Discordance between Hip and Spine Bone Mineral Density: A Point of Care.” The rules here forbid me to post the link.

I would like to go off alendronate (Fosamax) partly because it inhibits bone resorption, which means my skeleton is retaining old bone that deteriorates as it ages, which can make it more susceptible to fractures. I'm 76, so this is happening in a lumbar spine that (see article) is undergoing age-related degeneration that can itself produce fragile bones given to fractures. As the NIH article points out can happen, a bone scan on my lumbar spine indicates it has gained BMD, but this probably reflects not healthy bone growth but lumbar degeneration (the bone gets spurs, squishes the cartilage, hardens where it shouldn't, etc., and so the DEXA reads it as having a higher BMD, but it's not healthy BMD). I do not want to host a double whammy—degeneration due to old age plus retention of deteriorated bone due to Fosamax anti-absorption properties. So what do I do?

What is likely to happen if I stop taking Fosomax? The NIH article says lack of treatment rapidly elevates BMD, but how can that be? Plus, the NIH article implies the increase in BMD would be bad. In what way?

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@sheilad1

Here are the full DEXA and TBS results from my last test. I consult with Keith McCormick DC who I can't say enough great things about, who was impressed with the DEXA being much more comprehensive than most. The office I did this at does research studies. There are only two places in all of South Florida, both in Miami that do the TBS. And we're lucky to have that.

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I drove 5 hours to have DEXA with TBS. I'm still waiting for them to send me the full DEXA report. I can't for the life of me figure out why it is so difficult for imagining centers to provide DEXA reports--last year to took me 2.5 months to get my regular imagining center to give me copies of my 2019 and 2021 full DEXA reports and ancillary data (this actually involved me calling the rep who services their machines so he could walk them through how to print the reports).

My overall numbers are not as good as yours and I am 54. I was diagnosed at age 50. My TBS scores for my lumbar spine (L1-L4) are as follows:

L1 = 1.278
L2 = 1.323
L3 = 1.342
L4 = 1.205
Normal microarchitecture is greater than 1.31 and degraded is equal to or less than 1.23.

According to my numbers, L2 and L3 are in the normal range, L1 is partially degraded and L4 is degraded. I'm really not sure about the results they gave for my L4 because from what I have seen, usually L1 is the lowest and L4 is highest and when I look at the picture of my spine it looks like they may have captured area that should not have been captured in the analysis which I know can skew the results.

I'm happy that your numbers have improved but one thing that I would like to mention is that your L4 looks like it might be compressed and compression fractures skew DEXA results by making the bone appear more dense than it actually is. Additionally, your TBS for you L1 is 1.086 and falls into the degraded range. You might want to ask your doctor about this.

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@0278

Can anyone tell me how this makes sense? “ If patients are left untreated for osteoporosis, their bone density will increase rapidly. ” Isn't the point of taking Fosamax, calcium, etc., to increase BMD? Is it a typo? The rest of the article, though discouraging, made sense. The article is from a legit source: NIH (the National Library of Medicine). Its title: “Discordance between Hip and Spine Bone Mineral Density: A Point of Care.” The rules here forbid me to post the link.

I would like to go off alendronate (Fosamax) partly because it inhibits bone resorption, which means my skeleton is retaining old bone that deteriorates as it ages, which can make it more susceptible to fractures. I'm 76, so this is happening in a lumbar spine that (see article) is undergoing age-related degeneration that can itself produce fragile bones given to fractures. As the NIH article points out can happen, a bone scan on my lumbar spine indicates it has gained BMD, but this probably reflects not healthy bone growth but lumbar degeneration (the bone gets spurs, squishes the cartilage, hardens where it shouldn't, etc., and so the DEXA reads it as having a higher BMD, but it's not healthy BMD). I do not want to host a double whammy—degeneration due to old age plus retention of deteriorated bone due to Fosamax anti-absorption properties. So what do I do?

What is likely to happen if I stop taking Fosomax? The NIH article says lack of treatment rapidly elevates BMD, but how can that be? Plus, the NIH article implies the increase in BMD would be bad. In what way?

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@0278 that is definitely a mistake in the article.

Can you do Tymlos or Forteo?

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I did not read the article, but I got my recent dexascan results that showed improvement in 2 areas. I was very surprised. Both spots in my hips went from osteopenia to normal. I do not take a medication. My lifestyle changes have included more dairy in my diet. I drink Lactaid milk 2-3 times per day, as well as eating yogurt and cheese daily. The other lifestyle change has been weight-bearing exercises and walking.
I was first diagnosed with osteopenia 30+ years ago. My first follow up dexascan (all of those years ago) showed a significant deterioration. I thought I was on the fast track to osteoporosis, but maybe not.

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@fuzzy64

I did not read the article, but I got my recent dexascan results that showed improvement in 2 areas. I was very surprised. Both spots in my hips went from osteopenia to normal. I do not take a medication. My lifestyle changes have included more dairy in my diet. I drink Lactaid milk 2-3 times per day, as well as eating yogurt and cheese daily. The other lifestyle change has been weight-bearing exercises and walking.
I was first diagnosed with osteopenia 30+ years ago. My first follow up dexascan (all of those years ago) showed a significant deterioration. I thought I was on the fast track to osteoporosis, but maybe not.

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@fuzzy64 for my own info and others, I have a few questions about your post (and they may not be relevant to you)
1) Was the "significant deterioration" right after menopause? My doc and my experience told me that there is a sharp drop at menopause followed by a gentler rate of loss.
2) Was your osteoporosis diagnosed with a DEXA score close to -2.5? In other words, were you on the line?
3) I have kept a chart of my DEXA's since 2001 (!). I do not conclude that one value or more improved, going from one DEXA to another, because what I have seen is that the values jump all over the place. I therefore have to look for trends over the years. As an example, my score for left femur might be -3 then -3.3 then -2.9. I don't really come to any conclusions from that, except that my osteoporosis is not borderline and still a problem!

For those with values not too far from -2.5 (or osteopenic) , I think a natural approach is good to try and I used to read a lot about this (and met with Keith McCormick). But for those of us with serious scores and/or fractures, doing natural approaches without meds now feels dangerous to me. So I just wanted to note that while at the same time congratulating you if you have indeed improved.

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