Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

Interested in more discussions like this? Go to the Digestive Health Support Group.

@jfar007

I was on lowFODMAP for over a year in the beginning when they had just lumped me into the IBS net. Did me no good and in fact I continued to get worse. Fast forward to now and we think its Methane SIBO-C. I used to have a variety of stool dysfunctions, but now it is down to the constipation. Just finished the Refaximin, and just starting on going the herbal route. I research like crazy, and found a couple studies that artichoke leaf and ginger improve motility so starting those. Also starting Allicin and Berberine and hoping like crazy it works.

Jump to this post

Pleas let me know how that works! I’m in the process of trying to find a naturopathic doctor to help treat SIBO. As the first antibiotic did nothing.

REPLY
@guerreraazul6

Greetings SIBO community!
Despite having a gastroenterologist specialist & many chronic SIBO symptoms, the specialist never suggested possible SIBO . Only after viweing a post from someone I follow on social media (who battles another condition I have) I requested testing. POSITIVE!!! It was relieving to finally have an answer & confirming what was going on with my body.

From the extreme gas, extreme fatigue, bloating, oily & foul smelling stools, belching, indigestion, acid reflux, loss of appetite, extreme constipation (which I've had since my intestinal issue & surgery) & the CONFUSION!!! Something was off with this body. And the abnormal breath aroma no matter how often you brush your teeth, tongue, gargle & floss, it was there!

I've had multiple surgeries on my abdomen & a couple involving my intestines. I've also had several rounds of antibiotics. Presently my body is extremely sensitive to antibiotics & many other medications.

My most recent surgery, earlier this year, confirmed severe adhesions & just as I assumed & informed my specialists, I felt as if the adhesions were on my small bowels. This is what precisely is going on with my insides, a portion of my small bowels are entangled in dense adhesions. I was informed that they couldn't see where the bowels began & ended within the adhesions & to avoid a leak, they elected not to proceed with adhesiolysis.

I had a severe reaction to an antibiotic I had taken in the past prior to this surgery (Dec. 2020). My gut was never the same after this.

Previously I was in the medical field for over a decade however I'm not a physician, so please always consult your treating medical professionals & ADVOCATE for yourselves. If they don't listen, respectfully fire them. This is your body & your life. No one likes to start from square one but this is your life, we as patients, as human beings, deserve a physician(s) who actually have our best interests as a priority. It is my belief that patient & physician should work as a TEAM.

I knew something was wrong. I eventually researched SIBO diets & reviewed a food map chart. I was also prescribed an antibiotic that costs over $600 US dollars. I declined mainly due to medical research that displayed that antibiotics do not cure SIBO & it will more than likely return.

Apparently I'd been battling SIBO at least since 2015 & I had a major flare in 2021 until presently. It won't back down! I can say that avoidimg certain foods does help some but not enough.

From the medical research online from a renown medical website, SIBO usually initiates when your small intestine doesn't move food along the way it should. Bacteria grows & sticks around too long. If the “good” bacteria that helps you digest food cannot keep up with the harmful bacteria, the “bad” germs can multiply too fast, leading to an imbalance. This is precisely my issue & more than likely everyone with SIBO issue. My food sits in my small intestines. It's absolutely miserable.

I avoid white refined sugar & I even monitor how much fruit I consume. I used agave instead of sugar but I must be careful about that now. I also live on laxatives as I won't ever be able to "normally" defecate. I have to properly hydrate to avoid dehydration. Sometimes I miss a day or two of laxatives (you can imagine my life) & SIBO flares like a raging bull! I can't do this to often in order to avoid another NG tube placement (I've had bowel obstructions).

I'm concerned about the cons of persistent laxative use however I have no choice. I have to alternate what I use for my body. Miralax was the safest medical recommendation for my body. I alternate because these wonderfully made bodies of ours develop a tolerance. I used EXPERIENCE by pure trim as well as some teas & dulcolax when I must. I can't emphasize how crucial staying hydrated while using laxatives, whether it's daily use or not. I learned that spring water is full of minerals & is naturally alkaline so I choose to drink that most of the time when I'm able to.

I've personally learned that gut motility & good gut health is key. It's unfortunate for those of us with surgical histories that involve the gastrointestinal system & abdomen because we're prone to SIBO & other issues per my medical research & from personal experience.

Keep in mind that medicine is a science & it is a science that we all will need throughout our lives. I urge all in this community to learn how to manage your SIBO with a good medical professional(s). Remember, research PRIOR to consuming anything & YOU choose what treatment options are best & the most comfortable for YOU. I learned the hard may at the price of my health etc. from another ailment that was ignored by a past medical professional. Please ADVOCATE ADVOCATE ADVOCATE for your body, your health & for your life!!!

*I am not affiliated with the companies for the products I use for my SIBO treatment that are mentioned in this post. My personal health information regarding SIBO is shared for educational purposes for those in this SIBO community & does not amount to professional advice.

*I am not a physician. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.

Jump to this post

@guerreraazul6 I just had laparoscopy and had adhesion still have GI issues but the biopsy of the OBGYN surgeon is focusing on the unexpected findings on my cervix and uterus… my GI oncologist did wanted me to get tested for SIBO with breath but I honestly don’t know what tests is the best and currently I’m disabled and i couldn’t afford my testing… I’ll keep trying and advocating regardless 🙏🏻 blessings

REPLY
@sade96

Pleas let me know how that works! I’m in the process of trying to find a naturopathic doctor to help treat SIBO. As the first antibiotic did nothing.

Jump to this post

Update: I think I was lucky because I didn’t suffer with SIBO-M for more than a year, so the Rifaximin worked for me. I am now mostly following the F-Factor diet, which is basically low carb plus a very high fiber/low carb cracker. Constipation resolved completely, and distention slowly going away. I am trying to be very careful with avoiding sugar because this is known to come back. I haven’t thrown up since September.
Glad to hear I can use Canadian pharmacy if there is a relapse, this drug is horrendously expensive in US. I am off the Allicin because it made me worse. Doing Ginger capsules, 3 Berberine per day, and 2 Atrantil per day. So far most days I feel normal!

REPLY
@sade96

Pleas let me know how that works! I’m in the process of trying to find a naturopathic doctor to help treat SIBO. As the first antibiotic did nothing.

Jump to this post

I tried a naturopathic dr/ chiropractor nothing covered by insurance first bust $500 out of pocket
Wanted me to buy 5 plus supplements non approved by FDA
Wanted me on this highly restrictive diet my IBS registered nurse & also registered dietician did not approve of such a restrictive diet. She felt once I went back to normal food symptoms would all return.
Ibguard, hypnotherapy, excersise, working with trained IBS dietician , helped me , xifian did not symptoms just came back which if you read the studies very predictable they will.
Also the studies say how many false positives there are in testing even at the hospital and really only a 5 % have SIBO is last study I read. Breath test at home are not accurate.

REPLY
@johnbluffside

I tried a naturopathic dr/ chiropractor nothing covered by insurance first bust $500 out of pocket
Wanted me to buy 5 plus supplements non approved by FDA
Wanted me on this highly restrictive diet my IBS registered nurse & also registered dietician did not approve of such a restrictive diet. She felt once I went back to normal food symptoms would all return.
Ibguard, hypnotherapy, excersise, working with trained IBS dietician , helped me , xifian did not symptoms just came back which if you read the studies very predictable they will.
Also the studies say how many false positives there are in testing even at the hospital and really only a 5 % have SIBO is last study I read. Breath test at home are not accurate.

Jump to this post

I’m thinking more “holistic” I feel like naturopathic doctors only help to a certain point. Instead of prescription meds, they give you supplements. Which is a lot of cases is needed, but not if you truly want to find the root cause & heal your gut. I feel as if it starts off with food. At this point I can’t even drink water without my stomach/gut burning. I think it might be something more then just SIBO. Today I start my Rifaximin 550mg 3x a day for 14 days. I’m praying it works.

REPLY
@guerreraazul6

Greetings SIBO community!
Despite having a gastroenterologist specialist & many chronic SIBO symptoms, the specialist never suggested possible SIBO . Only after viweing a post from someone I follow on social media (who battles another condition I have) I requested testing. POSITIVE!!! It was relieving to finally have an answer & confirming what was going on with my body.

From the extreme gas, extreme fatigue, bloating, oily & foul smelling stools, belching, indigestion, acid reflux, loss of appetite, extreme constipation (which I've had since my intestinal issue & surgery) & the CONFUSION!!! Something was off with this body. And the abnormal breath aroma no matter how often you brush your teeth, tongue, gargle & floss, it was there!

I've had multiple surgeries on my abdomen & a couple involving my intestines. I've also had several rounds of antibiotics. Presently my body is extremely sensitive to antibiotics & many other medications.

My most recent surgery, earlier this year, confirmed severe adhesions & just as I assumed & informed my specialists, I felt as if the adhesions were on my small bowels. This is what precisely is going on with my insides, a portion of my small bowels are entangled in dense adhesions. I was informed that they couldn't see where the bowels began & ended within the adhesions & to avoid a leak, they elected not to proceed with adhesiolysis.

I had a severe reaction to an antibiotic I had taken in the past prior to this surgery (Dec. 2020). My gut was never the same after this.

Previously I was in the medical field for over a decade however I'm not a physician, so please always consult your treating medical professionals & ADVOCATE for yourselves. If they don't listen, respectfully fire them. This is your body & your life. No one likes to start from square one but this is your life, we as patients, as human beings, deserve a physician(s) who actually have our best interests as a priority. It is my belief that patient & physician should work as a TEAM.

I knew something was wrong. I eventually researched SIBO diets & reviewed a food map chart. I was also prescribed an antibiotic that costs over $600 US dollars. I declined mainly due to medical research that displayed that antibiotics do not cure SIBO & it will more than likely return.

Apparently I'd been battling SIBO at least since 2015 & I had a major flare in 2021 until presently. It won't back down! I can say that avoidimg certain foods does help some but not enough.

From the medical research online from a renown medical website, SIBO usually initiates when your small intestine doesn't move food along the way it should. Bacteria grows & sticks around too long. If the “good” bacteria that helps you digest food cannot keep up with the harmful bacteria, the “bad” germs can multiply too fast, leading to an imbalance. This is precisely my issue & more than likely everyone with SIBO issue. My food sits in my small intestines. It's absolutely miserable.

I avoid white refined sugar & I even monitor how much fruit I consume. I used agave instead of sugar but I must be careful about that now. I also live on laxatives as I won't ever be able to "normally" defecate. I have to properly hydrate to avoid dehydration. Sometimes I miss a day or two of laxatives (you can imagine my life) & SIBO flares like a raging bull! I can't do this to often in order to avoid another NG tube placement (I've had bowel obstructions).

I'm concerned about the cons of persistent laxative use however I have no choice. I have to alternate what I use for my body. Miralax was the safest medical recommendation for my body. I alternate because these wonderfully made bodies of ours develop a tolerance. I used EXPERIENCE by pure trim as well as some teas & dulcolax when I must. I can't emphasize how crucial staying hydrated while using laxatives, whether it's daily use or not. I learned that spring water is full of minerals & is naturally alkaline so I choose to drink that most of the time when I'm able to.

I've personally learned that gut motility & good gut health is key. It's unfortunate for those of us with surgical histories that involve the gastrointestinal system & abdomen because we're prone to SIBO & other issues per my medical research & from personal experience.

Keep in mind that medicine is a science & it is a science that we all will need throughout our lives. I urge all in this community to learn how to manage your SIBO with a good medical professional(s). Remember, research PRIOR to consuming anything & YOU choose what treatment options are best & the most comfortable for YOU. I learned the hard may at the price of my health etc. from another ailment that was ignored by a past medical professional. Please ADVOCATE ADVOCATE ADVOCATE for your body, your health & for your life!!!

*I am not affiliated with the companies for the products I use for my SIBO treatment that are mentioned in this post. My personal health information regarding SIBO is shared for educational purposes for those in this SIBO community & does not amount to professional advice.

*I am not a physician. Consult a medical professional or healthcare provider if you are seeking medical advice, diagnoses, or treatment.

Jump to this post

Same issues, I had 2 surgeries. My kidney & Gallbladder. So of course prone to SIBO. Taking laxatives can be really BAD for gut health. I used to take miralax like crazy. What has helped and is gently but you’ll have 2-4 BM the morning after is magnesium oxide!!! Im telling you this stuff is magic!!! I have one kidney so I have to be careful with my magnesium but this is hardly absorbed throughout your body. Magnesium oxide causes the intestines to release water into the stool, which softens the stool and relieves constipation and irregularity. I had a colonic & the RN performing the colonic suggested it to me & I have never went back to laxatives, that’s what has helped me.

Where I live they don’t test for SIBO, I had to beg my GI doc to prescribed me medication for it. I had all the symptoms because I researched it. Today I start my Rifaximin. I know it doesn’t always work for people and it my SIBO can come back but my idea is, if I can just get it under control then work along a holistic herbalist to help as well & my IBS nutrients I can beat it. But again we have to find the root cause, which is the problem.

REPLY
@jfar007

Update: I think I was lucky because I didn’t suffer with SIBO-M for more than a year, so the Rifaximin worked for me. I am now mostly following the F-Factor diet, which is basically low carb plus a very high fiber/low carb cracker. Constipation resolved completely, and distention slowly going away. I am trying to be very careful with avoiding sugar because this is known to come back. I haven’t thrown up since September.
Glad to hear I can use Canadian pharmacy if there is a relapse, this drug is horrendously expensive in US. I am off the Allicin because it made me worse. Doing Ginger capsules, 3 Berberine per day, and 2 Atrantil per day. So far most days I feel normal!

Jump to this post

Where do you get the Ginger capsules, Berberine Atrantil? Do you take this now so that the SIBO doesn’t come back ?

REPLY

Yes, after a lot of research, these natural ingredients can help stop a relapse. I got them all on amazon. Berberine turns out to help with several other factors as well, such as cholesterol, sleep, weight management. All have been easy for me to tolerate. The Allicin gave me severe symptoms.
It’s expensive to “treat” this but very much worth it.

REPLY
@jfar007

Update: I think I was lucky because I didn’t suffer with SIBO-M for more than a year, so the Rifaximin worked for me. I am now mostly following the F-Factor diet, which is basically low carb plus a very high fiber/low carb cracker. Constipation resolved completely, and distention slowly going away. I am trying to be very careful with avoiding sugar because this is known to come back. I haven’t thrown up since September.
Glad to hear I can use Canadian pharmacy if there is a relapse, this drug is horrendously expensive in US. I am off the Allicin because it made me worse. Doing Ginger capsules, 3 Berberine per day, and 2 Atrantil per day. So far most days I feel normal!

Jump to this post

What dose of rifaximum? What pharmacy?

REPLY

I was taking 3 horse pills of Rifaximin a day. I’m with Kaiser and my co-pay was $650- yikes! But it was worth it for me

REPLY
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