I am just figuring out how to navigate and respond here. Thank you so much for the encouragement. We have an appointment on the 30th with his primary Hemo-oncologist. I have entertained e-mailing him directly with my concerns, but have felt somewhat reluctant as he is seeing 40 patients a day! How is that even possible???

We see the other Myeloma specialist next week to discuss the SCT. I have asked my husband to at least employ the new doc to do the induction tx in tandem with his current doc.

As for me, I wandered into the oncology resource center quite by accident. I am seeing the therapist at the moment. Everyone has the same advice. Be assertive and persistent. I appreciate the supportive words and agree 100% that the squeaky wheel gets the grease.

My husband starts the 3rd cycle of treatment on Monday. His Revlimid did not arrive despite having put the request in on the 13th of January. Not sure that one day is going to impact his 14-day on, 7-day off cycle, but yet again, falling through the cracks.

The very best to you. Thank you for responding. It is inspiring to hear that you have had 22 years!

Warm regards,

Patty