PPI use and side effects

Posted by mikejjb123 @mikejjb123, Sep 20, 2022

My doctor told me to take dexlansoprazole in the morning for chronic nausea when nothing else worked. Well, not so nauseas as before, but now have a bad acid taste in mouth all day long. Not seeing dr for another month. Any ideas or suggestions. Was taking pepcid twice a day but now only at night. Thanks.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for riflemanz64 @riflemanz64

So what do I take to clear up my chronic gastritis?
I’m going to ask my doctor about this.

Jump to this post

I was on 80 mg of protonix daily for 1 month. I avoided trigger foods also.

REPLY
Profile picture for bosco17 @bosco17

I tried to stop ppis again but acid rebound was just too much.Taking 20mg for stomach ulcer but I dont think that dose will heal me. Im gonna have to try and see if I can beat the side effects. Im a complicated case . Repeated diverticulitus, Liver tx, heart attack, lots of plaque,stomach hernias. Im suffering with this ulcer issue. Cabbge juice, DGL Licorice and aloe vera gel is something you can also try. Trouble is my transplant meds are what is causing my problem and I cant stop them. To me it seems when I try to stop the ppis my acid becomes worse than before. Big Pharm at it again?? Its very hard to get off them once theyve sucked you in!!!!!!!!!!!!!!! Good luck to you

Jump to this post

Hi there
Yes it sounds like you have a lot going on. Again so sorry that all this has happened to you, so I was reading there is a taper you can use to get off the PPI’s. The theory is to do it slowly, and begin by reducing first amount and then frequency over a month or so. Have you ever tried that?
I am going to try the DHL… so how do you prepare cabbage juice and the aloe Vera?

REPLY
Profile picture for rozy288 @rozy288

Keep calling Mayo Clinic Jacksonville to get on waitlist. Took me a long time then waitlist a long time , then 3 more months to get appt . 7 months total .
I went 3 days testing out patient and Dr. Was no better than previous Gastro Dr’s . I’m a medical mystery for 9 years. It’s horrendous!

Jump to this post

Hi Rosy
I am sorry I do not know your story just reading your last post. Please if you would tell me your story, i have an intake call with a Mayo on Monday, I am absolutely miserable and do not know where to turn!

REPLY
Profile picture for cblue @cblue

No, sorry , I never heard of that. What are your symptoms? I was referring to surgery called fundoplication… in a support group , I hear ( mostly, but not only) bad news about successful cases of this surgery. I would love to know if there is unbiased data on the success rate and how common complications are… especially in populations over 65.. but at some point I may have to decide on the best surgeon & go forward. Mayo ( at least in one location) is not even taking names for a waiting list.

Jump to this post

I have upper abdominal pain, constipation, gas, belching, bloated stomach. No OTC meds have helped and no PPI’s or any other prescription medication has helped. Been bedridden for a year now.

REPLY
Profile picture for bosco17 @bosco17

Anybody taking this medication and experiencing side effects: INSOMNIA, depression, joint pain, ANXIETY, tingling nerves, dry mouth, fatique, excessive urination, heart pressure or palpatations, scatchy throat, etc, etc,. This is a nightmare!! What side effects are you experiencing and how do you handle it?????

Jump to this post

I too was placed on a PPI for a second time. After 6 months, I wanted to go off due to my concerns of side effects which I wasn’t experiencing. But this was my second time on a PPI. I asked my doctor there’s no way to know if this is being effective. She sent me to GI and I had a third endoscopy. Result: my cells were hypertrophic and told to no longer take the PPI. We are led to believe these meds heal. These medications do not heal, they reduce or eliminate symptoms for a period of time. Symptoms do come back as did mine. I turned to functional medicine to find a cause for my digestive symptoms and gerd. Testing results: I had a small intestinal bacteria-SIBO- as well as a parasite and fungus. Protocol included prebiotics, probiotics, digestive enzymes, and working with a nutritionist to make changes to my diet to promote a healthier biome.

REPLY
Profile picture for tk1 @tk1

Hi Rosy
I am sorry I do not know your story just reading your last post. Please if you would tell me your story, i have an intake call with a Mayo on Monday, I am absolutely miserable and do not know where to turn!

Jump to this post

My story is too long to post .
Hopefully you will get a better GI Dr than the one they assigned to me at Mayo Clinic Jacksonville. I’m no longer a patient after the three tests in 2020 there .
I still suffer day and night with chronic horrible symptoms. 7 diagnoses and over 20 tests in 10 yrs . I’m so fatigued in day and just try to do my best to get things done ✔️ abs survive another day . My sleep 💤 is horrible because my gut and intestines are non stop 🛑. I deep wet belch over 2000 x a day night , tastes like gut lining . Omg 😳. I just saw Functional med practitioner , going to do extensive bloodwork and another abdominal ultrasound soon . Started me on a Bile reflux med you put in water . I’m not too hopeful as it be tried everything and I mean everything on the market , holistic, OTC . I’m a medical mystery.
I wish you all the best …..

REPLY
Profile picture for bosco17 @bosco17

Anybody taking this medication and experiencing side effects: INSOMNIA, depression, joint pain, ANXIETY, tingling nerves, dry mouth, fatique, excessive urination, heart pressure or palpatations, scatchy throat, etc, etc,. This is a nightmare!! What side effects are you experiencing and how do you handle it?????

Jump to this post

I asked my Primary care Dr. about the drug Pantaprazole and it's side effects and he said would you rather have cancer or deal with side effects of the PPi? He said that doesn't mean that I'll get bad bones or kidney problems.

REPLY
Profile picture for bosco17 @bosco17

Anybody taking this medication and experiencing side effects: INSOMNIA, depression, joint pain, ANXIETY, tingling nerves, dry mouth, fatique, excessive urination, heart pressure or palpatations, scatchy throat, etc, etc,. This is a nightmare!! What side effects are you experiencing and how do you handle it?????

Jump to this post

Tried 6 PPIs each one horrible side effects
Luckily mine were small Dr said he wasn’t worried wanted me to try to relax get excersise and enjoy life each day due gut therapy, Nerva tapes and laugh great advice just some days not enough and work with a FODMAP trained registered dietician

REPLY
Profile picture for bosco17 @bosco17

Anybody taking this medication and experiencing side effects: INSOMNIA, depression, joint pain, ANXIETY, tingling nerves, dry mouth, fatique, excessive urination, heart pressure or palpatations, scatchy throat, etc, etc,. This is a nightmare!! What side effects are you experiencing and how do you handle it?????

Jump to this post

Hello there I started taking Pantroprazole 40mg twice a day since 12/10/2022 I haven't felt much of those side effects But I do feel anxiety and dry itchy patches of skin. My Anxiety might be because of the final diagnosis of my ulcer though. For me a week after finding out I had an ulcer, I was told that what they found after biopsies turned out to be cancer. The whole experience so far this past month has caused me major Anxiety. How long have you been taking this medication? Sorry if this scares/worries you in any ways.

REPLY
Profile picture for bosco17 @bosco17

Ive been on 40mg of Pantoprzole for 4 weeks and my RBC count, Hemoglobin,Iron, Hematocrit have gone abnormal. Anyone else having these types problems?

Jump to this post

Hello; I have been on PPIs [Rabaprozole [20mgs 2x per day]] for over a year now and they work well for GERD with no side effects, YET. I know about the long term effects but they work for me. [H2 blockers don't] so I have little choice other than the surgery "Funduplication" which I would like to avoid. I Have tried Diet change to no avail.However for the last 2 weeks I have experienced a continuos chronic stomach ache, mild most of the time but is now becoming more intense. No other symptoms just general belly ache. From your experience has anyone else found this be a side effect of long term PPI use? or something else? Doc appt in a week. Thanks

REPLY
Please sign in or register to post a reply.