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Getting your first appointment

Visiting Mayo Clinic | Last Active: Mar 21, 2023 | Replies (110)

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@bea66

Thank you for sharing. Currently my husband is in need of finding a specialist in managing his diabetes II. We need to get this balanced before tackling the other issues. In November he went into a diabetic keto acidosis & is now basically bedridden, has memory gaps and is weak. He’s also dealing with long Covid (possibly) as well as 2 other issues: a 7cm brain tumor (non cancerous) and a hernia. Both surgeries are on hold though until his A1C is down from 12 to a 7 or 8 for a period of 2 months or so. His glucose level in November was at 680 I was informed!!
After being in ICU and the neuro ward hes now at a skilled nursing facility/rehab and everything is strictly controlled- his meals are regular, portioned and tests & meds are performed regularly & efficiently - no room for error by him managing this.
However I feel I’m living in a nightmare - his improvement is very slow. I have 2 boys at home and I’m
Trying to keep positive and balance life but we’ve not been together as a family since Nov 20th & see no end insight. The facility is great but i feel he needs more specialized care. We have a endocrinologist appointment in 2 weeks - an MD until I’m able to complete the forms from Mayo to Internal medicine / I already have a Mayo # but that’s all I’ve managed to achieve so far. Any advice you can give me as to what to expect as far as what happens next at Mayo ? Husband has Medicare and a BCBS supplement plan. Hoping that was the best option considering his needs .

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Replies to "Thank you for sharing. Currently my husband is in need of finding a specialist in managing..."

Regarding "Husband has Medicare and a BCBS supplement plan. Hoping that was the best option considering his needs ." If that is traditional/original Medicare where you have Part A, Part B and Part D and you have a supplement (Medigap plan) that is the best thing to have. It gives you choice on where to go. I have BCBS Senior Gold as my supplement plan and I can self-refer and go wherever they accept Medicare. It is the Advantage plans (Part C) that restrict where you can go.

Hi @bea66, you've been on an intense and frightening journey with your husband. I can imagine with 2 sons at home and their dad in care, it is hard to keep a semblance of normal. I want to acknowledge the burden that you are carrying.

Post intensive care syndrome is something that some patients experience after spending time in ICU. What many people and providers don't recognize is the post-ICU can affect family members too. You can read a bit more in this blog post.
- Post Intensive Care Syndrome and The Family https://connect.mayoclinic.org/blog/pics/newsfeed-post/breaking-it-down-post-intensive-care-syndrome-and-the-family/

If you wish to connect with others talking about ICU experiences and getting support, see this support group:
- Intensive Care (ICU) https://connect.mayoclinic.org/group/intensive-care-icu/

To connect with others about diabetes or to talk with other caregivers, see these groups:
- Caregivers support group https://connect.mayoclinic.org/group/caregivers/
- Diabetes & Endocrine System support group https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

Did you meet with the endocrinologist? How are you doing?