Omg! Did you go with a disability lawyer????? I went online and found a disability law firm and in two months I was on NYS disability. They sent me an envelope to send my medical records - I sent them back a box full lol!!! If you present evidence of an extreme disability such as you have, in PAPER form, a disability law firm should love you and help you. I was very surprised I got it so fast. Thank God Because $249 every two weeks was not cutting it. That was private disability. And that was when they sent it every two weeks. I had to threaten to call NYS disability on them. Then the checks came regularly. I can't believe they are not giving it to you. Gets me so angry!!! Now my husband and I help out anyone who needs help. We have to help each other because the hospitals and doctors don't.
Once again. If you didn't already, get yourself a disability lawyer. They only get a small percentage of your money when the court approves it. You DONT pay them directly.