← Return to Thyroid? Or something else? Constant internal shakiness

Discussion

Thyroid? Or something else? Constant internal shakiness

Diabetes & Endocrine System | Last Active: Oct 30, 2023 | Replies (279)
Comment receiving replies
@mothermary1

Hi, I would never have surgery unless cancer. I have close relatives who had thyroid cancer. My mom and her two brothers as well. I have had that lab also and negative. I think it might be an iodine deficiency which I believe can be ruled out by an easy urine test. I understand it’s rare in this country but with gastroparesis my diet is very very poor. I keep asking to run it but doctors don’t agree. I’m looking through a local lab called Quest and I’ll pay to get it done. I’ve had positive ANA since 2017 too, but all the other tests normal. I have skin rashes all the time and mouth sores very frequently as well. Autoimmune is so hard to diagnose and I don’t want a diagnosis unless it’s proven a true positive. I’ll keep doing my research and take suggestions from here. Sometimes folks have wonderful ideas or tests that helped them.
Thanks…Joanne

Jump to this post

Replies to "Hi, I would never have surgery unless cancer. I have close relatives who had thyroid cancer...."
annewoodmayo | @annewoodmayo | Feb 23, 2023

Hi Joanne,

You may want to reconsider your idea on the autoimmune diagnosis. Some autoimmune diseases can progress a LOT more and a lot faster without treatment.

My eye doctor-- who was seeing me every 3-6 months to check my field of vision while I was on plaquenil-- suggested to me that, since many of the treatments overlap, I continue treatments without an absolutely verified diagnosis.

This was hard for me to accept, but I did continue, and I'm really glad that I did.

The scientific research into autoimmune diseases and treatments is relatively new and changing rapidly. There are still many unknowns that hinder making an absolutely verified diagnosis. The science just ain't here yet, and we patients may just have to take the doctor's best guess.

I am not a medical professional. I was diagnosed with autoimmune diseases (one doc said Lupus, the next one said spondyloarthropathy) in 2012 with elevated ANA, fatigue, body pains.

When my treatment (biologic via infusion) was interrupted and sporadic for about 18 months, I went from mostly functional, working full-time to disability. Based on my experience, I would recommend treatment rather than waiting.

Good luck to you! Best wishes

VIEW AND REPLY