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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (329)
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@sunfishgirl

Update: yes, I’m relapsing and progressing so it’s out with Rituxan and in with Zanubrutinib in four weeks time. Dr says he’s had phenomenal results with Z and predicts I will do well. Hope he’s right.

Has anyone else taken Z for smzl?

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Replies to "Update: yes, I’m relapsing and progressing so it’s out with Rituxan and in with Zanubrutinib in..."
Colleen Young, Connect Director | @colleenyoung | Feb 5, 2023

@sunfishgirl, this is good news that zanubrutinib (Brukinsa) was recently approved and shows remarkable results. I will be interested to follow your experience as will @mariko572 @jam5 who were recently looking to learn more about people's experiences.

Is there a specific reason that you have a waiting period of 4 weeks before starting treatment?

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jam5 | @jam5 | Apr 18, 2023

How has your experience been thus far with Brukinsa ( Zanabrutinib) ? Any side effects? Are you taking 320mg each day in two divided doses/
Are you on any other medications for cardiac issues, such as blood thinners for Atrial fibrillation?
Thank you

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