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@hopeful33250

@patriciajean

So glad to hear that you are being so proactive. Getting many opinions and not being dissuaded with the "dismissive" doctors is so very important. I encountered many dismissive neurologists in my journey to find an answer to the balance, coordination and gait problems. It took me nearly 20 years before I had a firm diagnosis. My PD is certainly atypical as well.

Like you, I will often drop things and sometimes they will fly out of my hand, which certainly makes for a lot of clean-ups. It really sounds as if you have found a good medication regime that is working for you.

I am not sure I understand the reason for the skin biopsy. Can you post again with more information about what that would show?

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Replies to "@patriciajean So glad to hear that you are being so proactive. Getting many opinions and not..."

It's a fairly non-invasive way to test for alpha-synuclein deposits. It's rather new so I'm not sure all neurologists accept this testing but it's supposed to have good specificity as to typical and atypical Parkinson's as well as other synucleinopathies. We may consider the test if my symptoms progress and we need more information. There's no need at the moment. This site won't let me post a link but you can look up skin biopsies for alpha-synuclein and probably find the info. Glad you're doing well, too! One thing I forgot to mention is that I asked my neurologist about therapy because I wanted to be proactive with my mental health and he recommended someone that is amazing and knowledgeable so that is also something I highly recommend for people. He's helped me immensely. Being mindful is really important whether there's a disorder or not!