Good luck to you too. They have no idea why mine died also. My lungs are very scarred and only my pulmonologist can tell when I have pneumonia. I live in The Villages in Florida. My husband did a lot of researching on what could be done. There is a doctor in New Jersey that sometimes replace the phrenic nerve. You have to have good oxygen. I don’t so I am not a candidate for that surgery. You would have to check with him. His name is Dr Michael Kaufman.