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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@suzbuck11

I haven't visited a headache specialist yet. I have visited a neurologist in the past for other things but I will say it is not a match for me. I haven't been brave enough to try the coffee but I guess I can do that on a day where I don't have any major responsibilities the next day. I've seen some people mention estrogen - I am already on that but that doesn't seem to help. I find I tend not to move if I am having one of these headaches so then I get stiff too. I find it hard to get up because I am in a lot of pain but I know that that is the only way to get past the headache. Wondering if taking an imitrex prior to bed time would help? I don't particularly want to be on additional medications but just wondering if it might help?

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Replies to "I haven't visited a headache specialist yet. I have visited a neurologist in the past for..."

Never tried imitrex prior to bedtime to prevent the headaches, nor treatment with estrogen. The regimen I am on (Indomethacin plus caffiene) was started by a headache specialist in San Fran,CA. Other meds for "hypnic" headaches did not work for me. While my regimen usually worked, my Mayo MD is hoping to ween me off Indomethacin since its not safe for long-term use (GI bleeding risk). I do take an additoinal med to help prevent GI bleeds called pantoprazole. I hope you can find safe treatments that are effective.