I used to take it; not sure if there was any difference. My nephrologist suggested I not take it as he said it was of no real value. He said you had to take way too much for it to do any good. Having been off it for several weeks, I can't say that I feel any different. I do take MSN. When I have stopped taking it, I do see a difference with my joint pain.
I'm wondering if Low Dose Naltrexone would help you. When I was suffering for 4 yrs waiting for a diagnosis of PMR, I hurt all the time, even when I was laying down trying to sleep. I convince my Rheumy to let me try LDN (I also had Crohn's so had other reasons for trying it) and he provided it. It was wonderful! In two days the non-active pain stopped. I could sleep and it helps with that. I had to stop it when I had my hip replacement- you can't use it with narcotic pain meds. But 3 weeks in, I realized that I hurt all over again and I couldn't wait to get back to it. Anyway, only side effects are vivid dreams which I find a real hoot. Look it up ot is an amazing drug. I take 2 mgs, usual dose goes up to 4.5mgs but I could tell the difference so stuck with 2mg. It also has an anti-inflamatory effect.
The most notable indicator of PMR is the fact that basically you wake up one day, literally after having no precursors, and your body is killing you. With my husbands, it started with his left hip never had he had any issues whatsoever. At any time he woke up one day it went from his left tip toes right hip to his left shoulder to his right shoulder to his hands.
It is a stark vast change from what you normally had known before.
The most notable indicator of PMR is the fact that basically you wake up one day, literally after having no precursors, and your body is killing you. With my husbands, it started with his left hip never had he had any issues whatsoever. At any time he woke up one day it went from his left tip toes right hip to his left shoulder to his right shoulder to his hands.
It is a stark vast change from what you normally had known before.
I agree that it is a radical change from your previous abilities. I had been having side effects from my glaucoma meds bothering my legs for some time so that was fuzzy. But suddenly, I couldn't pick up my western saddle (35lbs) because my arms hurt. I knew something was wrong.
There is a question I would ask you or anyone else if the pain that was experienced was while the muscles were being used or while they were at rest?
I agree that it is a radical change from your previous abilities. I had been having side effects from my glaucoma meds bothering my legs for some time so that was fuzzy. But suddenly, I couldn't pick up my western saddle (35lbs) because my arms hurt. I knew something was wrong.
There is a question I would ask you or anyone else if the pain that was experienced was while the muscles were being used or while they were at rest?
I agree that it is a radical change from your previous abilities. I had been having side effects from my glaucoma meds bothering my legs for some time so that was fuzzy. But suddenly, I couldn't pick up my western saddle (35lbs) because my arms hurt. I knew something was wrong.
There is a question I would ask you or anyone else if the pain that was experienced was while the muscles were being used or while they were at rest?
Thank you for your feedback. I would like others to report also. What I am trying to tease out is whether the non-active pain is related to the PMR, or some other source.
Muscles would hurt when I used them but it was worse at night. Hips and shoulders, couldn't lay down. Spent nights between bed and chair. Sitting to rest after working outside, trying to move again afterwards would usually make me wish I hadn't stopped.
I use it every day in oatmeal or lattes. Can’t say I’ve seen any benefits from it. Also ear 4 prunes every day which is supposed to help with inflammation. On 2 mg of prednisone and having some shoulder issues again but nothing compares to 2 1/2 years ago. Who knows.
Muscles would hurt when I used them but it was worse at night. Hips and shoulders, couldn't lay down. Spent nights between bed and chair. Sitting to rest after working outside, trying to move again afterwards would usually make me wish I hadn't stopped.
I have spent many nights between my bed and favorite chair so can definitely relate. My PMR hip/girdle pain is actually bad when standing & walking but it also hurts when sitting or lying down if I am in a bad flare. I think there is also a little tingling or burning to it. If my husband massages it too deeply I have also noticed that the pain is unbearable. My Shoulder pain is worse when using my arms for a prolonged period (i.e, washing my hair). I think I’m learning to distinguish my degenerative disc from PMR pain because it tends to be more pin pointed and a little easier to tune out. The PMR pain is more disabling and harder to ignore. I hope it is not just because I have been coping with DD pain for a long time and PMR pain is newer. I hope that is helpful and praying we all turn the corner soon!
I just started taking Tumeric 630 mg two weeks ago. I am also taking Omega 3 fish oils (3200 mg) and Pycnogenol 100 mg. All are anti-inflammatories. I take calcium and magnesium to support bones and fight off osteoporosis as well as a multivitamin, Vit D3.
I exercise regularly - walking and fitness class. I'm not sure how much all of it helps but feel like it can't hurt.
Be well all.
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I used to take it; not sure if there was any difference. My nephrologist suggested I not take it as he said it was of no real value. He said you had to take way too much for it to do any good. Having been off it for several weeks, I can't say that I feel any different. I do take MSN. When I have stopped taking it, I do see a difference with my joint pain.
The most notable indicator of PMR is the fact that basically you wake up one day, literally after having no precursors, and your body is killing you. With my husbands, it started with his left hip never had he had any issues whatsoever. At any time he woke up one day it went from his left tip toes right hip to his left shoulder to his right shoulder to his hands.
It is a stark vast change from what you normally had known before.
Good luck
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2 ReactionsI agree that it is a radical change from your previous abilities. I had been having side effects from my glaucoma meds bothering my legs for some time so that was fuzzy. But suddenly, I couldn't pick up my western saddle (35lbs) because my arms hurt. I knew something was wrong.
There is a question I would ask you or anyone else if the pain that was experienced was while the muscles were being used or while they were at rest?
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1 ReactionFor me it was more noticeable when I tried to use the muscles or pressed on them, like rolling over in bed.
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2 ReactionsFor me it when I used my muscles. Overnight I could not get out of bed due to the pain. The previous day, I went to my doctor, was able to walk.
Thank you for your feedback. I would like others to report also. What I am trying to tease out is whether the non-active pain is related to the PMR, or some other source.
Muscles would hurt when I used them but it was worse at night. Hips and shoulders, couldn't lay down. Spent nights between bed and chair. Sitting to rest after working outside, trying to move again afterwards would usually make me wish I hadn't stopped.
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1 ReactionI use it every day in oatmeal or lattes. Can’t say I’ve seen any benefits from it. Also ear 4 prunes every day which is supposed to help with inflammation. On 2 mg of prednisone and having some shoulder issues again but nothing compares to 2 1/2 years ago. Who knows.
I have spent many nights between my bed and favorite chair so can definitely relate. My PMR hip/girdle pain is actually bad when standing & walking but it also hurts when sitting or lying down if I am in a bad flare. I think there is also a little tingling or burning to it. If my husband massages it too deeply I have also noticed that the pain is unbearable. My Shoulder pain is worse when using my arms for a prolonged period (i.e, washing my hair). I think I’m learning to distinguish my degenerative disc from PMR pain because it tends to be more pin pointed and a little easier to tune out. The PMR pain is more disabling and harder to ignore. I hope it is not just because I have been coping with DD pain for a long time and PMR pain is newer. I hope that is helpful and praying we all turn the corner soon!
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Hug
1 ReactionI just started taking Tumeric 630 mg two weeks ago. I am also taking Omega 3 fish oils (3200 mg) and Pycnogenol 100 mg. All are anti-inflammatories. I take calcium and magnesium to support bones and fight off osteoporosis as well as a multivitamin, Vit D3.
I exercise regularly - walking and fitness class. I'm not sure how much all of it helps but feel like it can't hurt.
Be well all.
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